Tag Archive for: charlotte cancer foundation

1st Annual Isabella Santos Scholarship Winner

We are thrilled to announce our 1st Annual Isabella Santos Scholarship Winner, Leah Shelton.  Leah was one of many who submitted an application for a $1,000 community service scholarship.  Leah is graduating from Marvin Ridge High School and will be attending Vanderbilt University in the fall.  It’s pretty amazing to think that Leah was in 8th grade when Isabella passed away… and look how Isabella’s legacy has carried on.

Isabella Santos Scholarship Application, Leah Shelton

Karen Murphy (ISF Event & Volunteer Director) and Leah Shelton

Hand in hand, Destinee and I step out of the shiny black limousine. The repeated click of a camera signifies that her mother follows close behind, eager to capture Destinee’s rare display of affection. All eyes are on us as we walk the red carpet, and although Destinee looks stunning in her floral dress that I helped her choose several weeks prior, she keeps her head down. I speak some words of encouragement, not expecting a reply from my nonverbal honoree. But then, something so unexpected happens that I pause for a minute: she squeezes my hand. Small moments like these remind me why I engage in community service. It is so easy to forget the real reason for volunteering when so many are caught up in graduation requirements, college applications, and resume-building. I volunteer because I have abundant joy that cannot be contained to me alone. I want others to share in this joy, and I struggle knowing that there are so many people in the world that do not have enough reasons to be happy. Being a Youth Mentor for the Sandbox, an organization that locks arms with families of children with cancer or another life-altering illness, provided me the perfect opportunity to share my positive energy. AlthoughDestinee’s illness is incurable, helping her to forget about her troubles, even if just for one night during the Evening of Believing Prom, was one small way that I could help bring a little more light into the world. To most people in the “Marvin Bubble,” issues like cancer seem so far removed from reality that they are often treated as irrelevant. I am an optimist, downright Pollyanna at times, and I often fall victim to the superficial sense of security and insistently sanguine perspective that exists in our little bubble. However, volunteerism helps to keep me grounded, humble, and connected to issues like cancer that are of such global significance. My purpose in aiding an organization that works to combat cancer is not to minimize my positive attitude, but rather to help others in a way that spreads this positivity.

  • Varsity Dance Team (grades 9-12)
  • Student Council (grades 9-12): Sophomore Class Vice President, Junior Class President
  • Spanish National Honor Society (grades 10-12): Vice President
  • National Honor Society (grades 11-12)
  • Junior Art League of Waxhaw (grades 9-12): Create community art pieces, volunteer at community art events, and learn about new artistic media and techniques from local artists.
  • Youth Mentor for the Sandbox (grades 11-12): Support families of children with cancer or another life-altering illness. Work to meet a fundraising goal of $500, represent the Sandbox in community events, and serve as an advocate for honoree as they prepare and participate in An Evening of Believing Prom.
  • Domestic Violence Advocacy (grades 11-12): Initiated a campaign to spread awareness for teen dating violence at Marvin Ridge. Coordinated with Turning Point to put on a presentation for ninth grade health classes. Volunteer at Second Chance Boutique. Working to continue campaign this May.
  • Assistant Coach for Middle School Dance Team (grade 12)
  • Assistant Dance Teacher at the Dance District of NC (grade 12)
  • Isabella Santos 5K Run for Kid’s Cancer (grades 7-12)
  • Progressive Movement Arts Centre Senior Company Team (grades 9-10)
  • The Dance District of NC (grades 11-12)
  • Queen City Audio, Video and Appliances Community Heroes Award (grade 12)
  • Varsity Dance Team Heart of a Maverick Award (grade 12)
  • Universal Dance Association All-American Dancer (grades 11-12)
  • 2017 National Merit Commendation
  • Outstanding Achievement Award for IB Spanish (grade 11)
  • Varsity Dance Team Most Improved Award (grade 9)
  • Academic Excellence Award (grades 9-12)

I plan to attend Vanderbilt University in the fall, and I expect to major in either chemistry or biochemistry. While I am still unsure where my academic journey will lead me in life, I know that I want to use the knowledge I gain to make the world a better place. Whether that is by discovering a cure for cancer or merely making a patient smile, I hope to find ways to spread as much joy as possible.  I have been extensively involved with a variety of community service organizations throughout middle and high school, and I plan to continue this involvement as I transition to college and adulthood. Teen dating violence is one cause that is particularly important to me, and I have spent the last several years spreading awareness and volunteering for a domestic abuse advocacy organization. As I begin a new chapter of my life next year, I hope to continue to empower young people to have healthier relationships. There is no way to “solve” domestic violence; however, by educating people about the warning signs, the prevalence and severity of this issue can be drastically reduced. In college, where many sexual assault cases go completely unnoticed, I hope to be the voice of those who are too afraid to speak, advocating for everyone’s fundamental right to love and respect. The best way to encourage others to have a positive impact on their community is to lead by example. Positivity is contagious, and if I continue to show those around me that service is a fun and rewarding experience that fosters inclusion, expands one’s global view, and provides an opportunity to apply academic learning to genuine human needs, I believe that they will be inspired to do the same.

The most critical way by which ISF can inspire teens to make Isabella’s dream a lifelong passion is to encourage them to create personal connections with cancer patients. I remember cheering on Isabella while volunteering at the Isabella Santos 5K with the Marvin Ridge Dance Team. She had just dyed her hair red so she could look like Ariel, her favorite princess (and mine!) Isabella was not able to attend the subsequent races, but the stories I heard of the profound effect she had on those around her impassioned me to promote this worthy cause. One of the most eye-opening experiences of my teenage years was serving as a youth mentor for the Sandbox. Earning the opportunity to form such a strong relationship with a child battling a chronic illness increased my awareness about those who face adversity every day, and this motivated me to continue to make a difference. In this way, these children became more than just statistics or sob stories in a magazine. They became real people, inspiring characters, who astound me every day with their incredible strength. ISF should create opportunities for youth to hear personal stories and interact directly with kids and families that are impacted by cancer. The presence of the Santos family in the Marvin Ridge community has always kept this cause in the forefront of my mind, so I believe that others will feel the same way if they can have a similar experience. Teens are always looking for opportunities to volunteer that are accessible and fit into their busy lives, therefore ISF should look for ways to tie service and fundraising into things that teens are already doing like sports teams and clubs.

ISF Funds Frontline MIBG Therapy with the Children’s Oncology Group

In this picture is Isabella in MIBG therapy at CHOPT in Philadelphia. Isabella not only received this as a end of life treatment instead of a frontline therapy… she had to travel away from her home and family to receive it. This will be a game changer for kids fighting.

In 2016, funded a Frontline MIBG Therapy project with the Children’s Oncology Group (COG). The purpose of this project was to determine the effectiveness of pulling MIBG therapy, which was traditionally used as an end of life treatment, to the frontline of therapy for children with high-risk Neuroblastoma. We are excited to announce, thanks to your donations – this trial is ready for children across the country. Starting in August of 2018, the COG will start the process of enrolling over 800 children with high-risk Neuroblastoma and will enroll children over the next 3 years. Tomorrow night, Dr. Peter Adamson, Chair of the Children’s Oncology Group, will be with us here is Charlotte to speak at a private event about the advancement of the program. Can’t wait to share more updates.

This is great news for Charlotte because as you know, ISF has agreed to fund the creation of a MIBG at Levine Children’s Hospital! We are inching towards our goal of $1 MILLION DOLLARS and anticipate breaking ground in 2018. What this means is that in just one year, our local children will benefit from a trial that YOU supported in a room that YOU built. This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. Amazing.

This is due to your support. So thank you. Children of Charlotte thank you.

We were so proud to have been able to donate a total of $175,000 to the COG through three of their children’s cancer trials and programs.  Learn more about the programs YOU helped us fund through the COG.

First Quarter Fundraising Update

We are excited to announce that The Isabella Santos Foundation has raised $260,000 in the 1st quarter of 2017. We have set a goal of raising ONE MILLION DOLLARS in 2017 for our 10th anniversary.  Your support will help us get our message of hope to more people than ever before and generate much needed research and treatment options to eradicate childhood cancers.
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It’s amazing to look back on where we were 6 years ago before Isabella passed away…   “I’m proud of our team and what we have done. Not only do we have the uphill battle every day but we do it in our own style and manage to keep it together the best we can. Not to mention the fact that while running uphill we have managed to raise close to $150,000 for various charities, mainly Neuroblastoma research. My mom and I were talking recently and my mom was saying how hard it is for her to understand all the good that Isabella brings to other people’s lives but how she has to suffer in the process. I’ve always struggled with this as well as I watch other children get to do all the “normal” things of childhood while she is hooked up to toxic treatments. But after thinking about it, I think of all the people in history that have suffered. But through their suffering, it brought something good. Maybe she is just one of those people in our lives that takes the bullet to make us all better people. Or maybe her suffering will help raise awareness and funds that will one day CURE all children. Who knows.” – Isabella’s Mommy, 2011
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Thank you to everyone for their passion and support.  It’s pretty darn incredible how far we have come.  We can accomplish so much if we fight cancer together.

ISF Volunteer Opportunity: Auction Committee

We can’t believe that it is almost May.  We have had such a wonderful start to 2017 and excited to dive into bringing you the BEST 5K and10K for Kids Cancer Race in September that you have seen yet.  This is our 10th annual Charlotte 5K and 10K race event and we look forward to celebrating Isabella’s life in the best possible way while bringing our community together.

At the 5K and 10K for Kids Cancer Race we have become known for our SILENT AUCTION.  What started out as a fun idea of having 20 raffles baskets available years ago has blossomed into fantastic way to raise funds for neuroblastoma research and pediatric cancer.  In 2016, our ISF Silent Auction and Raffle raised $80,000!  That is incredible!  Our raffle and silent auction includes beauty/spa packages, sporting events, date night outs, vacations, jewelry and more.  There is something for everyone.  We are looking for new volunteers to join our Auction Committee to help us.  Not only is volunteering for ISF rewarding, we can guarantee you will have fun while meeting many great faces.

“When I originally became involved with ISF, I was a volunteer on the Auction Committee.  Every year we host a huge auction at our annual 5k/10k for Kids Cancer in September.  The auction has become a staple at the race and is responsible for a large percentage of the monies raised at this event.  I felt such pride in being a part of something bigger than myself with a purpose of helping children fight cancer!  I didn’t necessarily have as much time to devote as I would have liked, but I did what I could.  I can truly say being a part of ISF has changed my life in so many wonderful and fulfilling ways! Today, I am the Auction Co-Chair and I couldn’t be more proud to lead such a giving and fun team!   We have several needs for this important committee.  Anyone with a passion to help others who can dedicate some time to helping us create an incredible 10 year anniversary auction this year is welcome!  We have needs for individuals who are not shy to ask for donation from businesses, or who have connections in the community.  We also need those who have time to fill out applications for donations, help organize the auction items, and help us wrap the packages!  We have room for anyone who can help!”  – Andrea Isaac, Auction Co-Chair
We have our first Auction Committee interest meeting on Wednesday May 3rd at 7:30pm.  If you can’t make the first meeting, we can send you details!  Please contact Andrea Isaac for the meeting location, if you are interested in learning more or have questions!  If you are business who would like to donate an item, all items are welcome!  Its great advertising as our auction is in front of thousands at the event itself as well as online!