Tag Archive for: charlotte cancer foundation

#WishWednesday

Wish Wednesday returns! We are so excited for our 10th annual 5K/10K/Fun Run for Kids Cancer on September 30th and want to make it the best yet! One of the most anticipated (for old and young) activities of our event is the Raffle/Silent auction.  We have many participants that come to the race JUST FOR the Raffle and Silent Auction.  We have something for everyone. But we need your help to get us there.

Every year, as we move into the auction gathering stage we ask for your help to help fill our auction baskets.  All things LEGOS… easily one of our most popular packages.  We put together a massive basket with lego sets, toys, books for both boy and girl.   We would love your help in purchasing legos for our silent auction. Click here to shop via our Amazon list. You can add it to your cart and it ships right to us: http://amzn.to/2rSmcCj

If you prefer to go to Target or another store, just mail it to us at:
500 Smokey Hollow Drive
Waxhaw, NC, 28173

It’s National Running Day

For National Running Day we are offering a $5 off coupon for our 10th Annual 5k/10k For Kids Cancer on September 30th. Take advantage and get signed up today! Discount available ONE DAY ONLY (June 7th).

 

 

Why $1,000,000?

WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital​ and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room? 🙂

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

 

It’s more than a running team…

We run and we fundraise. But we also make new friends, meet for socials, laugh and act silly. But there is nothing better than building relationships while making an impact in the community. Isabella’s Dream Team fundraises for childhood cancer research, but excited to add the following commitments as part of our giveback initiative:

2. Make dinner for families staying at Ronald McDonald House of Charlotte
3. Collect school supplies for Classroom Central
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WHAT’S THE FUNDRAISING COMMITMENT?

The fundraising component is minimal compared to the larger charities that ask you to cover the difference if you do not meet the minimum. We simply ask each participant to commit to fundraising at least $500, but our hope is that each person will fundraise much more than that. Don’t fret, we will help you along the way with fundraising ideas and examples.
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WHAT RACES ARE WE TRAINING FOR?

  1.  Isabella Santos Foundation 10K/5K for Kids Cancer (9/30)
  2.  Rock ‘n’ Roll Savannah (11/4)
  3. Charlotte Marathon (11/11).
  • New this year:  Train with the team for the ISF 10K on Sept 30th.
  • RnR Savannah offers a half and full marathon, and a half marathon relay (6-7 miles per person).
  • Charlotte Marathon offers a half and full marathon, and a marathon relay (5 runners: 4-6 miles increments).
  • New this year: “One to run. One for fun.” challenge to run back to back half marathons in Savannah & Charlotte. $1,000 minimum fundraising commitment comes with swag bag filled with lots of goodies.
  • We’ve had teammates in the past run: Chicago Marathon, Marine Corps Marathon, New York City Marathon, and numerous others as part of our team. It’s your choice what race you’d like to do, and we could always adjust the training schedule to match your race.

WHAT WE PROVIDE?

  • Training schedules (10K, half, half marathon relay, marathon & marathon relay) – training starts the week of July 10th.
  • Team swag
  • Weekend long runs, weekday run options
  • Socials
  • Camaraderie
  • Motivation

HOW TO JOIN THE TEAM?

  • Email Coach Tom at tom@isabellasantosfoundation.org
  • Create your First Giving fundraising page: 2017 Isabella’s Dream Team
    • $500 commitment for 10K, half or full marathon.
    • $1,000 commitment for the “One to run. One for fun.” back-to-back challenge.
  • Register for your race and distance
  • Recruit your friends, family, coworkers to join via social media and let them know you just joined #isabellasdreamteam

Our goal this year: 200 participants raising $200,000. 

Learn more about Isabella’s Dream Team or contact Coach Tom with questions.

Wait until they become dragonflies…

June marks a significant date as it is the month that Isabella lost her fight to neuroblastoma. This year will be 5 years since we lost her to this horrible disease on June 28th, 2012. The Santos family has been through their ups and downs in dealing with losing a daughter, sister, granddaughter, great-granddaughter, niece and cousin. But as you have most likely noticed, they have persevered… and they lead the push to fight for kids with cancer in Isabella’s honor. This month we will be sharing both the happy and raw times as we celebrate Isabella’s spirt and the legacy she left behind.

Wait until they become dragonflies…

“We are doing horrible things like talking to hospice about funeral homes, what to do if she dies in Disney, how to talk to our kids.. But I’m also getting moments last night where Isabella and I took a bath together and I washed her up and talked about all kinds of things like what animal we would like to be… she of course would be a bunny. I got her outand dried her hair and we cuddled on the couch. Hospice suggested a book called Dragonflies and Waterbugs to help talk about death to children. It’s a great book about this family of waterbugs who will occasionally crawl up a stem and not come back… even though they seemed very happy in their waterbug family. They made a pact that the next person that goes will promise to come back and tell what is up there. But when the next bug goes up the stem, she turns into a beautiful dragonfly. She loves to fly around and can see the waterbugs below. But when she tries to return, she can’t get through the water. Instead she will have to wait until someone else in her waterbug family decides to join her as a dragonfly so they can fly around together. I’ve only read Isabella and Grant the book but will use it as an example when the time comes.” – Isabella’s Mommy (June 3, 2012)

We bought a bulk stack of the Dragonflies and Waterbugs book and gave them to all of Isabella’s sweet friends and family to help everyone discuss her death. So now every time you see a dragonfly… don’t brush it away . It could be Isabella wanting to say hi.

Dragonflies and Waterbugs book: http://amzn.to/2s6Uu4F

We can accomplish so much more if we fight cancer together.  Learn more about donating to the Isabella Santos Foundation.