State-of-the-art cancer treatment suite planned for Levine Children’s Hospital

We talk a lot about our $1 MILLION goal this year. Dr. Javier Oesterheld, Levine Children’s Hospital head pediatric oncologist, and Isabella’s mom were on NBC Charlotte this week to discuss the new state-of-the-art MIBG room at Levine’s that will help families with kids facing cancer. Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients.

WATCH SEGMENT HERE

What is a MIBG, why does it need a room and why is it so expensive? Read More…

2nd Annual ISF Kids T-Shirt Design Contest

2016 Design Winner

Back again!  The ISF youth t-shirt designs we received last year were so cute… we have to do it again.  Kids ages 5-12 years old are invited to submit an original logo design for the Isabella Santos Foundation 5K/10K race event.  The winning logo design will be feature on t-shirts given to all YOUTH participants at the ISF 5k/10K event.  Thank you Charlotte Eye Ear Nose & Throat Associates, P.A. for sponsoring the ISF Kids T-Shirt Design contest for a second year!

This year we were super excited to have our favorite art studio, Small Hands Big Art, host a T-Shirt Design Workshop last week to kick off the contest.  We were also super excited that it filled up immediately.  Many creative and cute designs came to life and now we are opening the contest up for emailed entries.  This being our 10th Anniversary, we are looking for a design that reflects that significance!  Parents- this is the perfect time to talk to your child about ISF, about kids fighting cancer and get them excited about participating in the 5K/10K/Fun Run event on September 30th!

The deadline for entries is Monday, August 28th.  Email scanned design to:  info@isabellasantosfoundation.org

Small Hands Big Art Design Workshop

DETAILS:

  • Ages 5-12
  • Design must be drawn by hand
  • Design must include one of the following elements:
    • ISF Girl
    • The number 10 (10th)
    • The World (earth)
  • Design must be drawn on a piece of plan white paper, 8 1/2 x 11
  • T-shits will be a shade of purple
  • Deadline for entries is Monday, August 28th.

 

LAST YEARS DESIGN SUBMISSIONS 

Upcoming ISF Volunteer Needs

We have a few events that are still in need of several volunteers .  Please click on the respective links to signup/email.  Contact Karen with questions.  We appreciate your time and passion, we could not continue our fight against childhood cancer without your dedication.
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1.   Party Like A Mother CLT, 8/18 (ISF is a beneficiary)
 
2.  Treehouse Vineyards Heritage Festival, 9/16 (ISF is a beneficiary)
  • ALL volunteers will get a t-shirt, a voucher for a bottle of wine from Treehouse Vineyards, and a swag bag!!
  • Treehouse Vineyards Heritage Festival Station Volunteer:  Email Torie if you are interested in volunteering at the various festival stations (i.e grape stomping, wine glass polishing, registration, etc…): torie@treehousevineyards.com
  • ISF Raffle and Ticket Volunteer:  Email Karen if you are interested in selling raffle tickets & working our raffle table. ISF will need 4 Volunteers each shift: kmurphy@isabellasantosfoundation.org
    • 1st Shift: 1:00 – 4:00 PM -FULL
    • 2nd Shift: 3:00 – 6:00 PM – still need 1-2 volunteers
3.  Race 13.1, 9/24
We have created an “ISF Volunteer Group” on Facebook for future opportunities & information.  ISF could not do the things we do with out the help of volunteers! By being a part of this group- you will be notified of ways that you can assist us throughout the year. Not only it is fun, but also rewarding to be part of our overall fight. We are ALL making a difference together and we would love to have you be a part of our ISF family. We hope that this group will be a fast and easy way to let you know what we have going on and where you can plug in to help. Please feel free to SHARE this page with anyone and ask as many members to join us too.

Our Little Cheerleader

One of Isabella’s favorite days of her life.
 
We LOVE the Carolina Panthers and excited to see them play in the first pre-season game tonight. Make-A-Wish Central & Western North Carolina and The Carolina Panthers Top Cats made her an honorary Top Cat for the day in November of 2011. She was low on energy but she muscled up the strength for the day. The crowd was so amazing to her and everyone on the Panthers organization laid out the red carpet for the Santos family. Her picture still hangs in the Top Cat locker room to this day.
As a previous Wish Family, we understand the importance of a child’s wish and how a wish experience can be a game-changer for a child with cancer.  The Make-A-Wish Foundation grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.  Over the past 10 years, ISF has donated over $143,000 to Make-A-Wish, granting over 24 wishes in the state of North Carolina.
Donate today to take action for pediatric cancer in Isabella’s honor.

The heart of a budding activist

Information and photos provided by Sofia’s mom

Yesterday, current cancer fighting patient Sofia had a fun reason to visit Levine Children’s Hospital.  As Sophia’s mom put it… “Today, we were able to celebrate with our own personal super hero, Dr. Joel Kaplan (Sofia’s head oncologist), as he received a grant from Hyundai Hope on Wheels.  Bonus:  the kids got to put their handprints on his white lab coat and on a brand new car!”

Dr. Kaplan and Levine Children’s Hospital was awarded a $50,000 Impact Grant from Hyundai Hope on Wheels.  This award was presented for his proven track record in providing excellent patient care to families affected by pediatric cancer and to support his continued efforts.  We couldn’t be more thrilled with this news, Dr. Kaplan not only is Sofia’s personal super hero… he was Isabella’s as well.

Sofia was diagnosed with Acute Lymphoblastic Leukemia in January of 2016 at the age of 7.  Before cancer, she was a happy, carefree 2nd grader who played soccer, took all kinds of dance classes, loved arts, crafts, hula-hooping, American Girl dolls and playing with friends and her big brother, Sam. She was blessed with such a sweet and normal childhood.  In the last 1.5 years since our lives were turned upside down, Sofia has continually amazed us with her courage and resilience. Every day we look at her and wonder how such a small girl can possibly withstand all the endless appointments, needles, pokes, tests, chemos, medications and hospital stays without even complaining or feeling sorry for herself.  Our favorite quote that seems to sum Sofia up perfectly is “Though she be but little, she is fierce.”
Sofia is still in treatment and will continue on her chemo regimen until May 2018 for a total of nearly 2.5 years.  We are extremely grateful that she is currently doing well and we are all trying to live as normally as possible between her rounds of chemo at Levine Children’s Hospital.  Sofia has even enjoyed being back in school with her friends after being homebound for one full year.  She still loves all things artsy and creative, especially designing new outfits and accessories for her dolls. She is learning to sew and hopes to be a fashion designer when she grows up. Sofia is excited that she was recently asked to be the Leukemia & Lymphoma Society’s 2018 Charlotte Girl of the Year because she hopes to inspire people to take action in the fight against pediatric cancer.  Behind her shy exterior lies the heart of a budding activist!

Tory Burch Shopping Event for Isabella Santos Foundation: July 12th

We LOVE Tory Burch here at ISF and excited that Tory Burch, SouthPark Mall is holding a shopping event benefiting ISF next Wednesday, July 12th from 6-8pm. This store has supported the foundation for several years, we appreciate our community friends who give back. 20% of the evening’s proceeds will benefit ISF and supporting the fight against childhood cancer

WEDNESDAY, JULY 12  |  6-8 PM

TORY BURCH

SOUTHPARK MALL

4400 SHARON ROAD

Please RSVP if you plan on attending          njackson15@windstream.net

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