Ewing’s Sarcoma
The Facts, Reality & Stories of Childhood Cancer
The Facts, Reality & Stories of Childhood Cancer
Pictured: Corey | Ewings Sarcoma | 1999-2019
Sarcomas are solid tumors that are formed from young cells that normally become bone, muscle, and other soft tissues, such as ligaments and joints. Sarcomas begin when a change or mutation occurs in one of these young cells, allowing the cell to grow uncontrollably and form cancerous tumors. There are many types of sarcomas that occur during childhood. About 12 in every 100 children with cancer will have a sarcoma.
Ewings sarcoma is the second most common tumor of the bone. Other names for Ewings sarcoma are “Ewing sarcoma family tumor” and “peripheral primitive neuroectodermal tumor (pPNET).” It often affects the bones of the pelvis, chest, arms, and legs, but can occur in any bone in the body. Ewing sarcoma can also begin in the soft tissues instead of in the bone. Ewing sarcoma most often occurs in older children and teenagers.
The Isabella Santos Foundation (ISF) is committed to improving rare pediatric cancer treatment options in an effort to increase the survival rates of kids with cancer so they can live their dreams. Our partnership with Levine Children’s Hospital funds The Isabella Santos Foundation Rare & Solid Tumor Program to provide the most comprehensive care and treatments for pediatric cancer in our community and across the globe. This clinic will offer the most advanced clinical treatments, including precision medicine and novel clinical trials, to bring forward the newest therapies and improve outcomes in childhood cancer.
Cancer is the leading cause of death by disease among U.S. children.
At 19 years old, constant pain in Corey’s bones lead to the discovery of stage IV Ewings Sarcoma in November 2018. He was diagnosed with a primary tumor on his adrenal gland, which was surgically removed and Corey underwent chemotherapy. In July 2019, the pain returned and a tumor was found on Corey’s back pressing on his spinal cord. When the tumor was surgically removed, Corey temporarily lost his ability to walk and use his bladder. More tumors were found on his left arm, sacrum, ribs, and pelvis. Corey underwent radiation in an effort to relieve the pain. Unfortunately, the tumors continued to spread and Corey ran out of treatment options.
On November 26, 2019, Corey lost his battle with cancer at 20 years old.