Volunteer Position Opening: Silent Auction Project Manager

Get involved in your community… a resolution on many 2018 Intention lists.  The impact of our raffle and silent auction at our flagship 5K/10K September event has grown leaps and bounds since introduced in 2013.  The dollars raised through our silent auction helps impact our direct mission of helping kids fighting cancer.  We are looking for a Silent Auction Project Manager (volunteer position) located in Charlotte to head up our 2018 Silent Auction Committee.  Our raffle and silent auction has become such an important part of our fundraising goal and we have some new things in store this year.  This is not a ‘start from scratch’ volunteer position as there is a committee in place and the structure is built.
Position Details:
  • Run monthly silent auction committee meetings
    • Set ongoing monthly committee meeting
    • Primary contact with committee volunteers
    • Go to on all committee questions & follow up
  • Incoming auction item data entry
    • Enter auction items as they come in from committee volunteers
  • Manage business contact list
    • Manage business contacts excel spreadsheet
  • Auction package display
    • Manage the packaging of all raffle & auction items needed for event location
Timeline:
  • February:  Committee meetings and auction collection starts
  • June-August:  Heaviest auction collection months
  • August & September:  heaviest volunteer work due to event date
Thank you to all the volunteers who help make our raffle and silent auction a success each year!  We couldn’t do any of this without you!  More than anything, we have a wonderful group of volunteers and it is a great way to meet new people and develop new friendships!  Please contact Andrea if interested: dre@isabellasantosfoundation.com

It Started With A Girl…

New year. New look.  With 10 years behind us, we made the decision to start the new year with an updated look.  We have so many new things on the horizon, we felt like our Isabella logo needed to evolve again as the foundation grows.

You probably have noticed that we take every detail into consideration here at ISF.  We like purple… we like to make sure our mark in on everything and no bow goes untied.  Our ISF girl logo is no different.

When the foundation was created, our stick logo was created based on Isabella.  Very innocent and child like.  Because of Isabella’s physical limitations, art became her safe place.  Isabella would spend hours drawing and coloring.  She would draw pictures for everyone and it became her way of saying thank you.  What started as a stick figure little girl that Isabella could easily draw and color, became something else.  It became her legacy.

Several years ago, Isabella’s stick figure logo evolved into the girl on the world.  After all, that is how we all saw Isabella.  We saw that the world was at her fingertips and no matter what happened to her, she was going to conquer anything.  It started with a girl….

This logo has moved and shaped into a life of it’s own.  We love to spot our Isabella logo around the community and on the walls in the hospitals or organizations we work hard to impact.  We love that Isabella lives on through her own art stamp and that we see her in the kids we are hoping to help. She is changing the world.

What do you think of our updated Isabella logo?

ISF Volunteers: 2017 Highlights

It’s pretty incredible to look at the amount of hours individuals invest together for a greater purpose. Our volunteer network continues to grow and we hope that you will add ‘Volunteer With ISF’ to your 2018 Intentions list. Thank you to everyone who gives their time and heart!
 
Our first event in need of volunteers is at the end of this month. American Bus Association is coming to Charlotte & has chosen ISF as their charity for their Give Back program. ISF will have a booth at the 5-day convention, Friday 1/26-Tuesday 1/30. Please consider volunteering for a shift(s).  Click here to view shifts and sign up.
 
Reminder: We have a “ISF Volunteer Group” Facebook page for opportunities & information. Please click & join to keep updated on volunteer listings and  updates throughout the year.  Questions or requests can be sent to our Event & Volunteer Coordinator, Karen Murphy: kmurphy@isabellasantosfoundation.org.

ISF 2017 $1 Million Goal Hit!

$1,000,000 was our 2017 fundraising goal. $1,025,467 was raised! We are beside ourselves with excitement and extremely grateful for your support. Thank you to our volunteers and employees that work tirelessly towards our foundation mission.

We set a very specific objective behind our 2017 goal… bringing a MIBG room to Levine Children’s Hospital. This new-state-of-the-art MIBG room will help families with kids facing cancer.  Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients. We are excited to see ground break in March in honor of Isabella’s birthday and look forward to sharing more specific developments as this new pediatric cancer treatment room and program developments.

ISF helped  fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG) last year. This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in late 2018 where an MIBG room is available.  It is very exciting that Levine Children’s Hospital will be able to offer this advanced therapy.

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

New Year, New Look, New Life

Written by Erin Santos, Isabella’s Mommy

January 1st, 2018 just seems unreal.  What seems more unreal is 10 years of ISF behind us.  We started out that first year when Isabella was diagnosed and raised $7,000.  Our 2017 books are closing and we hit the goal we had in place of 1 million dollars raised.  Unbelievable.  It makes me wonder where this little “project” of ours is going to go.  With an even bigger goal in 2018, as well as a new treatment room in construction, in her name, opening its doors later this year, I know there is so much more ahead of us to accomplish.

With growth, comes change… some good and some bad.  Isabella will always be the true Founder of this organization and her face will forever be tied to all we are doing.  However, as a growing foundation, we have realized that giving in her honor the last couple of years has propelled us to success we never would have imagined.  But now, we want to refocus our organization on the children we are trying to save today.  I have always said there is an Isabella in every city.  And as we expand into new cities and markets, it is becoming painfully obvious that there are children everywhere who are in the fight of their lives.  We want to start introducing you to these children, their families and their stories.  They need your help to fight this disease that still has a survivor rate that would break any parent’s heart.  We also want to start educating our supporters on other rare cancers that can benefit from the treatments we are funding.  Neuroblastoma is scary, but there are other cancers out there with ineffective treatments and without organizations like ours in their corner, kids have very little chance for a cure.  Every child’s life is worth saving and we want to spread our wings a little more with your help.

I’m excited about the upcoming changes in our focus because even I need to put my memories of Isabella in a safe place.  For years I told myself that we were different.  We could handle loss and turn this horrible tragedy into something that could potentially change the lives of others.  While we are doing this, unfortunately, it came at a price.  Death changes people and we are not exempt from this.

I always look back at the person I was before cancer, during cancer, and even during her death.  I’ve referred to it as a movie I watch because that person seems unrecognizable to me now.  Her death has made me independent and strong, focused and determined.  But it has also made me closed off and cold at times.  I can be a hard person to get to know because her death has built a fortress around me.  I find solace in being alone, my anxiety can take me over completely and I find at times that I want to run from everything.  While losing a child makes you realize how important every minute is with your other children, sometimes it comes at a price to others in your life.

I don’t know why we hurt the ones we love the most.  We just do.  And sometimes we can’t stop doing it.  Death changed me a lot, and it changed Stuart too.  The person you once went to battle with becomes the new battle.  You find yourself just trying to get through the day and the other person becomes the casualty of this.   One thing remained consistent through our grief, our love for her, our kids and all that ISF is accomplishing.  But, I think we have just hit a time in our life when we want to find happiness again, and sometimes that happiness isn’t together.

While I feel like this is a very personal subject, I have never shied away from my life being an open book.  I felt like it was important to let the supporters of ISF know that nothing is changing with ISF.  Even though Stuart and I are no longer together, we still stand together and will do everything we can to continue to grow the foundation and make a difference in her name.  I love when we are together at an event and people say to me, “You would never know about the changes behind the scenes in your family.  You guys seem stronger than ever.”   Maybe because the love that kept her alive for so long will always be there for each other because we know the other one has been to hell and back.  There is too much history to be any other way.  So that is all you will see.  We will always be together for her.

We hope these changes will not impact the support for all we are doing together.  My belief is this is just a new start to a big year ahead and we are so proud of what we have accomplished.  This is just the beginning… maybe just a new beginning.

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