On the Seventh Year Since the Death of My Daughter (Queen City Nerve)

Originally Distributed in Queen City Nerve Newsletter and on Queen City Nerve

Dear Charlotte, 

I remember sometime around a decade ago when I first came across Erin Santos’ blog. I’m not sure who shared it with me or how I came across it, but I was immediately enveloped by Erin’s raw writing style, confronting her child’s cancer diagnosis with honesty, fear, love and dark humor. I kept a picture of Erin’s daughter, Isabella, on my computer desktop back then as a reminder to check back in with the blog from time to time. The picture showed a 4-year-old Isabella in her family’s driveway with a pink flower dress on, her head bare save for a headband with a flower on it, if I’m remembering correctly. I remember every time I stared at that picture before going to the blog and I would think or say aloud, “Please don’t be dead.”

Until last Thursday, I had still never brought myself to read the post Erin wrote the day after Isabella lost her battle with cancer. Seven years later, it hits just as hard. I’m just as thankful for writing the post she shared on our website last Friday, on the seventh anniversary of Isabella’s passing, which of course uses Erin’s usual raw honesty to confront her feelings about moving on with her life and surpassing a dark milestone in which her daughter will have been gone for longer than she lived. While I know Erin will never forget Isabella, another thing that will never change as time passes is the life-saving impacts of The Isabella Santos Foundation (https://isabellasantosfoundation.org/ ), which Erin founded and has gone on to raise hundreds of thousands of dollars for pediatric cancer research and recently funded a $1 million leading-edge rare pediatric cancer treatment room at Levine Children’s Hospital called the Isabella Santos Foundation MIBG Suite

I’m not one to use this publication as a solicitation tool, but if you have money to spare, that’s one of the places I would suggest you put it. And the story below should give you a sense of why, because no parent should have to go through what Erin has gone through. 

Ryan Pitkin, 
Editor-in-chief
Queen City Nerve
Charlotte’s Cultural Pulse

ON THE SEVENTH YEAR SINCE THE DEATH OF MY DAUGHTER

June 28 marked the seventh anniversary of the death of Isabella Santos, whose mother, Erin Santos, founded the Isabella Santos Foundation. On that day, Erin shared three posts with us ranging from the day after Isabella passed to June 28, as she looked ahead at how to live in a world in which Isabella has been gone longer than she lived. 


read article on Queen City Nerve>>

Platelet Drive in Memory of Isabella Santos (4 pm ​News WCNC)

Originally Posted on WCNC

One hundred platelet donations in seven days. That’s the goal for the week-long platelet drive that the Isabella Santos Foundation is hosting with OneBlood to honor Isabella Santos.

Local Platelet Drive (Charlotte Today, WCNC)

Originally posted on WCNC

The Isabella Santos Foundation and OneBlood are teaming up for a week-long platelet drive in hopes of receiving 100 platelet donations.

Brixx Wood Fired Pizza Presents $10,000 Check To Isabella Santos Foundation (WCCB)

CHARLOTTE, NC – From May 20 through May 26, 2019, locally owned Brixx Wood Fired Pizzapledged to donate 100% of kid’s meal sales to the Isabella Santos Foundation. Brixx raised a total of $10,000 during the fundraiser – that’s almost 2,000 kid’s pizzas! – which will go directly to improving pediatric cancer research and treatment options.

For the full article go here.

Room at Levine Children’s Hospital helps children battling cancer receive unique treatment (WSOCTV)

CHARLOTTE, N.C. – There is a unique radiation treatment that is helping children battle rare cancers with minimal side effects, but it requires a specialized lead-lined room to protect families and caregivers from that radiation.

There are only 20 rooms in the U.S., and one of them just opened in Charlotte at Levine Children’s Hospital thanks to a $1 million grant from the Isabella Santos Foundation.

For the full article go here.