MIBG Treatment

Levine Children’s Hospital will now be 1 of 20 hospitals (and the first in the region) to have a MIBG Treatment room in the U.S. The two-room MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects. In addition, availability of this room will allow for research studies aimed at testing the effectiveness of early MIBG treatment regimens. Isabella and her parents were forced to travel to Childrens Hospital of Philadelphia due to this treatment not being available in Charlotte. We are excited that we are changing this challenge for other families.

Construction is anticipated to be completed in December 2018 with the first patient availability in January 2019.

Currently, under construction, the two-room Isabella Santos Foundation MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients. In addition, the availability of this room will allow for research studies aimed at testing the effectiveness of early MIBG treatment regimens.

WHAT IS MIBG?  MIBG, called Meta-iodobenzylguanidine, is a compound that can be combined with radioactive iodine to deliver targeted radiation therapy.  MIBG can be used to treat high-risk neuroblastoma, a tumor that beings in nerve tissue in infants and young children.  MIBG is administered to a child through an intravenous line and absorbed by tumor cells, which are killed by radiation emitted by the radioactive MIBG.  This therapy destroys tumors while sparing normal, healthy tissue.  MIBG therapy is generally more effective, less painful, requires less time in the hospital than other treatment options, and is administered with little to no side effects.

As the MIBG suite progresses at Levine Children’s Hospital, we want to ensure we continue to help prepare for the kids and families who will be entering this treatment program.  New in 2018 we have developed a fundraising program focused on MIBG Therapy, the MIBG Ambassador. Our goal for 2018 is to have 20 members collectively raising $100,000. You do not have to live in Charlotte to participate as this program will affect kids and families beyond our region.  Become an MIBG Ambassador to help us get ready!

Construction Updates

MIBG Treatment Room Construction Update #2, Levine Children’s Hospital

This is really happening… look at the ISF MIBG sign that labels the suite!  Steel beams will be going up next and the lead brick walls will be installed in about 4-6 weeks.

 

ISF Blog – June 6th
 

MIBG Construction Begins at Levine Children’s Hospital

Dawn (MIBG Therapy Program Director) and Lindsay (MIBG Head RN) stopped by the Levine Children’s Hospital ISF MIBG construction site to view the first steps of construction.

 

ISF Blog – May 16th
 

Million-dollar donation will help families battle children’s cancer

Erin Santos cherishes the seven years she had with her little girl Isabella before she lost her battle with neuroblastoma cancer in 2012. Friday would have been Isabella’s 13th birthday.

WSOCTV – Mar. 9th
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