Tag Archive for: pediatric cancer

Run Dream Team Run

Look at these ISF Dream Team members who ran the annual Isabella Santos Foundation 10K and received an AWARD! Congratulations not only to these individuals but the whole team. All of you are such an inspiration! You train. You show up. You run. You inspire. You fundraise. You win. Cheers to you! We are grateful for your hard work and dedication to ISF, Isabella and kids fighting cancer.

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  • Overall 10K Male:  1st PLACE Brian Levy 38:54
  • Overall 10K Female:  3rd PLACE Danielle Volman 49:19
  • Male 10K Age 1-14:  1st PLACE Jackson Lowry 54:30
  • Female 10K Age 1-14:  1st PLACE Addison Ficker 1:10:34
  • Male 10K Age 60-69:  3rd PLACE Tim McBride 1:01:43

SF Dream Team

The ISF Dream Team, created in 2014, is a running group that assists you in training to run the race of your dreams.  You can train for a 5k, 10k, half marathon, half marathon relay, full marathon relay, or a full marathon.  You are provided a training schedule, invited to group runs, and inspired by a phenomenal team of people.  Not only will you meet a dynamic group of people, but you will also be inspired through your friends and family as they support you through the training.  The ISF Dream Team has raised over $400,000 to date, with the funds contributing to our local Charlotte community.  If you want to join the ISF Dream Team, we would love to hear from you.  Please email us at info@isabellasantosfoundation.org.

Leading The Way in MIBG Therapy

Dawn Bartock

We are very fortunate to have Atrium Health’s Levine Children’s Hospital and an incredible pediatric nurse practitioner who is leading the charge with MIBG Therapy in our region.

Dawn Bartock, MSN, CPNP, CPHON, is the MIBG Therapy Program Lead at Levine Children’s Hospital. Being a nurse is all she has ever wanted to do. Dawn started her nursing career in Pediatric Hematology/Oncology, including time with Pediatric Hospice, then joined Levine Children’s Hospital from 2005-2011. She obtained her nurse practitioner degree in 2011 and left LCH to further her career in Pediatric Oncology at Texas Children’s Hospital and at Children’s Healthcare of Atlanta, where she was the MIBG Therapy Nurse Practitioner. 

After Levine Children’s Hospital got the green light to build an MIBG Therapy Suite, Dr. Oesterheld – Dawn’s mentor – tapped her to lead the MIBG Therapy Program literally from the ground up. So in 2015, Dawn returned to Charlotte and to Levine Children’s Hospital. What started as a side project while she was working clinically as a nurse practitioner on the inpatient oncology unit, has become a full-time position where Dawn oversees every aspect of planning and building the ISF MIBG Therapy Suite. 

“Being a part of the MIBG Therapy Suite construction process has been rewarding and fun,” said Dawn who is currently taking a break from the clinical part of her job, which will resume when the MIBG room opens later this year. “I feel like the jack of all trades and love been involved in this project.”

Not only does she bring her previous MIBG experience to her role and vision of what this state-of-the-art MIBG program should entail, Dawn has a connection to Isabella. During her first stint at Atrium Health in the outpatient clinic, Dawn was one of Isabella’s nurses who assisted the oncology team with writing chemo orders, scheduling scans, and helping Erin and the family with questions and concerns throughout therapy. 

“Isabella was always a sweetheart who had the sweetest little voice,” said Dawn. “One of my biggest memories of Isabella is the relationship she had with her brother, Grant, and them holding hands during clinic visits. It is very exciting to be involved in Isabella’s legacy.”

Levine Children’s Hospital will be 1 of 20 hospitals to have a MIBG Treatment room in the U.S. and the only location in the Charlotte region. The two-room MIBG suite will provide targeted radiation to pediatric neuroblastoma patients with minimal side effects. This will impact kids fighting cancer beyond the greater Charlotte region and will eventually expand to include adults with rare tumors.

“It is very important that we tailored the suite to the patient and the family while keeping safety for the patients and staff the top priority,” said Dawn.

Patients will stay in the MIBG room 3-7 days after they get their injection. The suite is designed with an adjoining room for parents to stay and to be more involved with the day-to-day care of the patient. The MIBG room will have a giant viewing window and a close-circuit monitor for staff to have constant video access – and even remote access – to the patient. Area organizations and businesses are helping fund items such as parent gift baskets, iPads for the patients and specialized sheets that patients can choose upon their arrival. 

“There is a lot of support in Charlotte with the Isabella Santos Foundation, other wonderful organizations and from throughout our community to create a welcoming, positive and comfortable experience for the patients,” said Dawn. “This is an exciting time for the Isabella Santos Foundation and Levine Children’s Hospital.”

We are looking for individuals who want to be part of providing comfortable care for the kids/families that go through MIBG Treatment. Our MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

 

On the Rebound: Cancer Can’t Keep Alex Sidelined

Basketball was everything to 11-year-old Alex Bogran – until a sudden leg injury left him sidelined last year.

A Lasting Presence

David Lieberman, ISF MIBG Ambassador

Isabella’s presence is POWERFUL.  In David Lieberman’s case, his nieces went to Calvary with Isabella.  David’s sister-in-law shared Isabella’s story with him, and he has been involved with ISF ever since.  

First it started off that his family participated in the annual ISF 5K every year.  “It felt tremendously good to be a part of something bigger than me.”  As David’s passion grew stronger and stronger, he continued to give back to ISF on a much larger level.  Giving back to ISF is “an opportunity to play a small role in the lives of people that are dealing with pediatric cancer.”

Even though David’s family has not been affected by cancer, he has known people who have battled it during their lifetime.  “It is highly probable that cancer will take someone that I love so I am choosing to be proactive in the fight to find a cure.”

David became an ISF MIBG Ambassador, with a goal to raise $5,000 for ISF.  You can help David reach his goal by participating in his raffle.  For $20, you receive 2 raffle tickets where you have a chance to win great prizes and gift cards.  Winners are announced on November 3rd.  For more details, visit www.JoinDavidFightCancer.com.  

That’s ACTION, David, thank you for representing ISF as a MIBG Ambassador.  Isabella thanks you!

MIBG Ambassador

Levine Children’s Hospital will now be 1 of 20 hospitals (and the first in the region) to have a MIBG Treatment room in the U.S.  The two-room MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects.  As the new MIBG treatment suite continues to progress under construction, we want to ensure that we are preparing for the kids and families who will be entering this program.  New in 2018, we have developed a fundraising program focused on MIBG Therapy – the MIBG Ambassador.  Our goal for 2018 is to have 20 members collectively raising $100,000 for this initiative.  If you are interested in becoming an MIBG Ambassador, please email info@isabellasantosfoundation.org.