Tag Archive for: Isabella Santos Foundation

2020… The Year of Change

Things are changing around here and we couldn’t be more excited about the direction we are headed. We are updating our brand, our logo, our mission and our giving strategy. Rest assured, we are staying on the same path as always, but we want you, as our supporter and donor, to have the opportunity to give to the area of our mission that speaks to you the most. Some of you might have a tie to a specific cancer, a strong feeling to help fund a trial in tribute of a loved one or simply believe in donating to give pediatric cancer lasting change. Whatever it is, we want you to feel good about the impact you are helping to make.

Our primary focus will continue to be on developing the ISF Rare and Solid Tumor Program at Levine Children’s. The only way to implement true change in the outcome of kids fighting rare pediatric cancer is through science and we believe Levine Children’s is on the brink of cultivating change here in Charlotte and beyond. But, we also know that there are so many pieces to the rare pediatric puzzle. Our vision is to inspire a 360 degree impact for these kids… from diagnosis, to treatment and ultimately, to survivorship. 

Behind the scenes, our team has been working through this vision for quite awhile and talking about a way to piece it all together. At the end of 2019, ISF was rocked to the core with the deaths of two very special kids…Madison Fedak and Corey Morgan. So in honor of them, we have selected national tribute grants to focus on during the first quarter to help impact Osteosarcoma and Ewing Sarcoma, the two rare cancers that they fought so bravely against. For us, this is just the beginning. 

We are so excited to release what we have spent months working on in honor of all the Isabellas, Madisons, Coreys, Brinns, Merritts, Nicholoas’ and Maxs out there! Stay tuned, we have so much to share next month. 

Together we can help kids Beat Cancer, Grow Hair, and Live Their Dreams.

$7,500 Granted to Cincinnati Children’s Hospital for DIPG Research

Family time and making memories is what the Barron family, whose daughter has DIPG, cherishes the most.  Thank you to Small Hands Big Art for inviting 4-year old DIPG warrior, Mackenzie, and her family in 2019 to their children’s art studio to create beautiful keepsake items.  A fun and family filled afternoon lead to several priceless art pieces for the family to hold close to their hearts forever.  We were fortunate enough to snag extra custom pieces of art to auction off at our 2019 Pumpkin Charity Ball at the end of October! 

$7,500 was raised during our live auction from the two beautiful pieces of art the Barron girls created!  Right before 2019 closed out we were excited to grant this $7,500 to Cincinnati Children’s Hospital Hematology And Oncology Unit for DIPG research.  Mackenzie is currently participating in a DIPG trial at Cincinnati Children’s and this grant was made in her honor!

More about these paintings:  Mackenzie’s painting was inspired by rainbow arches and the girls selected a variety of joyful colors to paint with.  Mackenzie’s favorite spot on the paint was a section of pink and white rainbow arches towards one of the longer edges that is reminiscent of a flower.  This piece was created with Acrylic Paint.

Read more on DIPG warrior, Mackenzie, and her family.

Private Benefit Dinner Raises $24,050 for Pediatric Cancer Research

Carl Showalter, owner of Showalter Construction, decided to take action and create impact for pediatric cancer through his network of friends and coworkers. Carl hosted a private benefit dinner at Del Frisco’s Double Eagle Steakhouse inviting 30 of his friends to introduce them to ISF and our mission. An event that cost us ZERO dollars or coordination… we just showed up to enjoy great food, company and conversation. This private dinner brought in $24,050 for rare pediatric cancer research.

We are so thankful for Carl’s generosity and for all the gentlemen who were interested in hearing more about what we are doing to bring change for kids fighting cancer right here in Charlotte. An incredible evening!

What a great example of how donors can take initiative and create impact for kids fighting cancer. Host a small dinner party or simply a in-home cocktail hour with your network. Interested in talking more about private benefit events, contact Chrissy, ISF Developement Director.

It’s a New Decade Executive Director Dish

Here we are in a new year, a new decade!  I have to say, our team at ISF is ready for a fresh start.  2019 brought so many ups and downs for us, by the time the ball was dropping, I was left feeling a little unsettled from the year we just completed.  Each year we try so many different things to grab your attention. I made it a point to pull Isabella back a little and have us introduce you to what was going on in your backyard.  Our Mother’s Day series was our first attempt to really get to know the families at Levine and I was reminded of what a difficult job these Moms (and Dads) have on a daily basis. From this series, new friendships were developed and bonds were formed, as our staff became regulars in the hospital.  

September rolled around and I couldn’t be more proud of what we accomplished for Childhood Cancer Awareness Month.  I have to say, hands down – the “Through My Eyes Series” that our beloved Rachel Wood took the lead on, changed many of you forever.  Our team too. I’m not quite sure she realized what she was taking on, as so many families were eager to tell their stories about what their world looks like as they fight for their lives.  The response was overwhelming, as each post affected people differently. We showed you different cancers, different ages, different prognosis and in the end… different outcomes. It has become a series we will do each year because it changed the way we do everything here at ISF.

To complete the month, we changed the look and feel of Isabella’s race in its 12th year, thanks to the help of Firebirds, Tito’s Vodka and Noda Brewing Company.  The addition of the brunch component was a homerun for all attendees.  I can’t tell you how exhilarating it was to hear all of the feedback from the participants.  A new buzz and excitement were present for the first time in a number of years and it could be felt by everyone!  The race was the perfect bow tied onto the month that we all worked so hard to complete. We continued to roll into the end of the year with another successful Pumpkin Charity Ball, raising more than ever from both events.

However, with the good… can oftentimes come with the bad.  And our last quarter at ISF shook us to the core. Three big losses in two months.  We attended too many funerals. It felt so unfair to watch Rachel devote her life to finding a cure for cancer, only to lose her Mother suddenly to Ovarian Cancer in November.   A Couple of our “Through My Eyes” campaign families, also took turns for the worse. Our Ewing’s Sarcoma warrior, Corey lost his battle with cancer in November and our sweet, cherished Osteosarcoma warrior, Madison lost her battle a couple days before Christmas.  These losses left our team stunned, wondering if what we were doing was all for nothing, if we couldn’t save these kids. I have to say, we pondered some big questions on the state of ISF after these monumental deaths.

So, for 2020 – things are changing.  And they are changing in a big way. Our 4th quarter donation tributes were at an all-time high and we realized that people want to kick cancer in the ass.  We are furious at this disease and find ourselves more determined than ever. We can’t let up, not even for a day.  If anything, we need to remain more focused than ever. For this reason, we are implementing a new mission that we hope will change outcomes forever.  It may have started with Isabella and our mission with Neuroblastoma, but now we have more children and more diseases to take on and we are ready. We have selected national tribute grants in the specialties of Ewing’s Sarcoma and Osteosarcoma in honor of Madison and Corey, that we will focus our efforts on in the beginning of 2020.  These initiatives will help kids nationwide and we won’t stop until we fulfill them. We will also be taking on specific efforts in the field of Rhabdomyosarcoma for our little warrior Merritt, as well as keeping a continued focus on Neuroblastoma for little Brinn, Max and of course in memory of Isabella.

We are going to allow each donation to be focused on what speaks to you, whether it be a specific child, diagnosis, or area of treatment.  Our continued partnership with Levine is progressing with the Rare and Solid Tumor Program, as we anticipate new details to share with you all.  Our look, our feel, our events, our staff and the families– you will see it all change and grow in 2020. We are all grown up and ready to kick cancer in the ass this year.  Needless to say, I think you may want to be around for this ride – because it’s going to be our biggest impact year to date. Stay tuned… we have lots to share in the coming months!

-Erin Santos, Isabella’s Mommy

2020 ISF INTENTIONS…

As you plan for 2020 we hope you include ISF as you set your intentions.   There are so many ways to give back and get involved to make a difference for kids fighting cancer.  We have so many good things happening and we can’t wait to share, but until then we wanted to share a few intentions at the top of our lists.  

Set It & Forget It!: Know you are supporting our mission regularly by signing up for monthly or quarterly giving.  Our recurring gift option lets you set your donation amount once… and forget it! 

Facebook Fundraiser: Facebook makes it ridiculously easy to fundraise for the cause of your choice to help create change.  We invite you to commit to creating a fundraiser for ISF to help impact pediatric cancer. Pick a day to celebrate a cause!

3 Wish Society: The 3 Wish Society is comprised of dynamic, committed and passionate donors who have the influence and resources to significantly impact the efforts of ISF. Donors receive invitations to mission related and VIP social events throughout the year, seats at the annual Pumpkin Ball in late October, receive special recognition via website, social media and at every ISF event. 

Ambassador: It’s simple… sign up, set up your own fundraising page/goal and tune into ISF social media channels for messages to share. ISF staff will provide support every step of the way including an invitation to a kick-off event, tool kit with everything that you need to be successful, gifts along the way as milestones are met and so much more. Engage your family, friends and entire network to raise funds for our vital mission.  Be sure to learn more about our partnership with our Ambassador program sponsor, OneBlood, and learn how donating blood and encouraging others to donate can raise funds in this fight.:

Volunteer: Feel good for doing good.  We have so many fantastic and loyal volunteers, our foundation could not function without each and every one.  Set your intention to volunteer this year by signing up for our ISF Volunteer List. 

Sponsor & Partner: Join us as a Sponsor or Community Partner to make an impact in 2020. It is a great opportunity to increase brand awareness and engage with people in the community all while providing a significant impact on pediatric cancer.

THANK YOU to the following businesses who have committed to be ISF Sustaining Sponsors for 2020: Jersey Mike’s, NoDa Brewing Company, OneBlood, Scoop Charlotte. And to all of our wonderful 2019 sponsors and community partners, we hope you will continue to make an impact with us in 2020.

All-In to Fight Cancer Donates $45,000 to Isabella Santos Foundation

Right before Christmas All-In to Fight Cancer quietly donated $45,000 to ISF! Their contribution allowed us to make the final impact in 2019 to Levine Children’s for the ISF Rare and Solid Tumor Program in the amount of $650,000! Year after year we have been both honored and blown away to be a beneficiary of their annual Texas Hold’em event here in Charlotte. This event was built to honor and continue one man’s legacy, Rob Ubank, who passed away from cancer. Because of this single annual event benefiting multiple local cancer organizations… Rob’s legacy now has fingerprints all of Charlotte.

Thank you All-In-To Fight Cancer for providing significant impact to not only our foundation, but so many other great organizations in our community like Go Jen Go! , ChemoCarsNovant Health, and The Paula Takacs Foundation for Sarcoma Research! We admire and appreciate your dedication, passion and hardwork!