Tag Archive for: MIBG treatment

ISF MIBG Ambassador: Cynthia & Kat Wood

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GOAL: Run 50K in 1 year to raise $5K for ISF. Say what??
 
This will be Cynthia’s 4th year fundraising for ISF and she has enlisted a special partner in crime. Cynthia decided to sign up as a MIBG Ambassador and think outside the box for her fundraising. Cynthia and her daughter, Kat, are committing to rack up 50K in runs to raise $5,000 within a year of this coming Thursday (June 28th)… the anniversary of Isabella’s passing.
 
Fundraising year after year gets hard, no matter who you are! Not only do we love that Cynthia’s daughter is getting involved (kids helping kids make our hearts melt), but that they are doing something different and new. Thank you Cynthia and Kat for your dedication in honor of Isabella. We can’t express how grateful we are!
 
Learn more about what it means to become an MIBG Ambassador.  Funds raised through this program will be distributed very specifically through our partnership with Levine Children’s Hospital with a very targeted purpose. So get creative and fundraise the way you want to.

ISF MIBG Ambassador: Tim McBride

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We are excited to announce our very first committed ISF MIBG Ambassador, Tim McBride. The ISF MIBG Ambassador is a new program we have rolled out where each ambassador commits to raising $5,000 through his/her own network. We couldn’t think of the most perfect person to help us kick this program off. Tim fundraises 365 days a year for a variety of foundations and types of cancers, all while leveraging what he knows and loves best: running, bringing joy to kids at Christmas as Santa McBeast, and making whatever impact he can in ALL that he does.

Tim just retired. So we have to make sure he stays busy! And we love that he doesn’t take no for an answer as he fights to crush cancer every single day.

Funds raised through this program will be distributed very specifically through our partnership with Levine Children’s Hospital with a very targeted purpose. So get creative and fundraise the way you want to.

We hope you will join us at our MIBG Ambassador KICK OFF meeting on May 22 at 6:30 at the Santos Home.  Drinks and light appetizers will be available.  Please R.S.V.P. by Sunday, May 20th.  If you cannot attend and would like information, please contact tia@isabellasantosfoundation.org for details.
You do not have to be in Charlotte to participate!  Email Tia for more information.
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Date: Tuesday, May 22
Time:  6:30 pm
Location:  Santos Home

We Did It: MIBG Treatment Room Coming to Charlotte

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Friday marked a huge milestone for our Foundation.  And we aren’t just talking about a monetary milestone and funding a million dollar project, but also an emotional one.  On what would have been Isabella’s 13th birthday, it was extremely special to be able to celebrate her life, her legacy and especially the IMPACT she is making on this world with the coming of an MIBG Treatment Suite at Levine Children’s Hospital.

Levine Children’s Hospital will now be 1 of 20 hospitals to have a MIBG Treatment room in the U.S.  The two-room MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects.  In addition, availability of this room will allow for research studies aimed at testing the effectiveness of early MIBG treatment regimens.  Isabella and her parents were forced to travel to Childrens Hospital of Philadelphia due to this treatment not being available in Charlotte.  We are excited that we are changing this challenge for other families.

The MIBG project team did not forget one single detail.  Most MIBG treatment rooms  are just a one-room area for the patient receiving treatment, while their parent or caregiver sits on the other side of a lead-lined shield.  The two-room suite will give the child receiving treatment the ability to see the parent or caregiver through the connecting room window.  We love all the details the project team has included into the treatment suite design like utilizing Isabella’s artwork and a multi-colored fiber optic light design on the ceiling.  And that’s just a start.

We were joined on Friday by our 3 Wish Circle Members and sponsors who helped us make this room a reality.  What was also special, doctors and nurses who treated Isabella during her time at Levine Children’s Hospital were  in attendence.  To watch them listen to Isabella’s mom as she spoke was incredibility touching.  It was definitely a full circle moment.  Everyone in attendance signed a piece of Levine history as the lead beam will become part of the suite during construction.

We can’t thank everyone enough for the support  and believing in our foundation.  You are helping us make a mark on the future and we will continue to strive to elevate cancer care for kids.  We look forward to sharing updates as construction begins in a few short weeks.   The hospital will have construction cameras, it will be fun to watch the room unfold.

News Coverage on the morning:

MIBG WSCOTV News Coverage

Molly Grantham 

 

 

 

Lake Norman Coffee for a Cure Brings in Over $35,000 for Pediatric Cancer Research

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2017 Lake Norman Coffee for a Cure. Photo courtesy of Localscroll.com

Our 2nd annual Coffee for a Cure hosted by our ISF Lake Norman chapter was a huge success.  Thank you to the 250 men and women who attended and the sponsors and local businesses who gave time and money to this event.  This event served as a call to action in the fight against pediatric cancer and to educate community members on the importance of bringing pediatric cancer treatments home to Charlotte.  We were able to raise $35,000 and donations have continued to come in.  These funds bring us one step closer to our 2017 $1,000,000 fundraising goal to fund the creation of a MIBG room at Levine Children’s Hospital.

Our Lake Norman chapter could not put on such a wonderful event if it wasn’t for the support of our community businesses who help us through their sponsorship. It is through their passion for charitable giving and making a local impact that we are able to continue Isabella’s fight. Thank you to the following businesses:

2017 Lake Norman Coffee for a Cure. Photos courtesy of Localscroll.com

During the event, we introduced our new major gift society, called The Three Wish Circle, with an annual gift of $5000 or more, donors can take their support of the ISF mission to the next level by funding more research for childhood cancer and help to bring innovative treatment options to our local community.  If you have questions or want to know more about how to take your support to the next level, contact our ISF Development Director, Tia Wackerhagen.

We cannot begin to put words to how grateful that we are for the impact you are helping us make, thank you for your support.. We are so proud of what we have accomplished together and it is because of YOU. We could not do this alone and could not continue our fight without your help. We humbly thank each of you and look forward to a world with no more cancer where we will beat cancer, grow hair and live the dreams of all children fighting the fight.

We appreciate Local Scroll Charlotte for capturing the event, view all photos of the 2017 Lake Norman Coffee for a Cure.

Why $1,000,000?

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WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital​ and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room? 🙂

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

 
DONATE TODAY TO HELP US GET TO $1,000,000