Isabella Santos Foundation 5K and 10K for Kids Cancer to Race Through Ballantyne – Sept. 29

CHARLOTTE, N.C. – Aug. 6, 2018 – Grab your running shoes and craziest purple gear, and join the Isabella Santos Foundation for its 11th Annual 5K/10K for Kids Cancer and 1-Mile Fun Run on Saturday, Sept. 29 in Ballantyne Corporate Park.

“Our annual 5K and 10K for Kids Cancer brings our community together to help celebrate Isabella’s life, raise funds for pediatric cancer research and to commemorate Childhood Cancer Awareness Month,” said Erin Santos, Executive Director and President of the Isabella Santos Foundation. “This is a fun, family-friendly event so we encourage people of all ages to join us in running or walking and turning Ballantyne into a sea of purple. Four-legged friends are welcome too!”

The event will take place from 7:30 – 10:30 a.m. at Ballantyne Corporate Park located at 15801 Brixham Hill Avenue, Charlotte, NC 28277. Race activities will go from 7:30 – 9:30 a.m. with the Kids Fun Zone and Silent Auction/Raffle open from 7:30 – 10:30 a.m. Registration fees vary and participants may register individually or as a team. For more information or to register, visit https://isabellasantosfoundation.org/.

Participants can further support the cause by creating a personal fundraising page and raising donations. Those not able to join the race can register as a Phantom Runner and will receive a T-shirt through the mail.

The family-friendly event provides fun for the entire family including: food and refreshments while supplies last; a silent auction and raffle; and a Kids Zone with games, face painting, slides, jump house and photo booth.

Brighthouse Financial is the presenting sponsor. Other sponsors include: Atrium Health’s Levine Children’s Hospital, AvidXchange, Ballantyne Pediatric Dentistry, Charlotte Eye Ears Nose and Throat, Community Blood Center of the Carolinas, Charlotte Smarty Pants, Cochrane Steel, Diamonds Direct, Dickens Mitchener, Hustle House, Merrill Lynch – The Rivlin Firestone Group,

Maxim Tickets, Modern Nissan of Lake Norman, Jersey Mike’s Subs, MassMutual Carolinas, Northwood Office, OrthoCarolina, Perfect Fit Placement, ScoopCharlotte, The Stone Man and Whole Foods Market. For more information about being a sponsor, contact Karen Murphy at kmurphy@isabellasantosfoundation.com.

Added Santos, “Huge thanks to our generous sponsors who help make this event a success. We are incredibly fortunate to have such wonderful organizations supporting Isabella’s dream of a world with no more cancer.”

About Isabella Santos Foundation

The Isabella Santos Foundation (ISF) is a 501(c)3 childhood cancer foundation dedicated to raising funds for research for neuroblastoma, other rare pediatric cancers, and charities that directly impact the lives of children with cancer. ISF was founded in honor of Isabella Santos from Charlotte, N.C. who lost her battle against neuroblastoma. ISF works to improve rare pediatric cancer treatment options in an effort to improve the survival rate of kids with cancer. For more information, visit www.isabellasantosfoundation.org  or follow ISF on Facebook (www.facebook.com/IsabellaSantosFoundation), Instagram (www.instagram.com/theisfoundation) and Twitter (www.twitter.com/TheISFoundation).

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CONTACT:

Jenni Walker – Walker PR Group – 980-339-8041-office/704-649-6571-cell

jenni@walkerprgroup.com

Isabella Santos Foundation Presents $100,000 Check to Levine Children’s Hospital

Left to right: Katie Winslow, Erin Santos and Karen Murphy with the Isabella Santos Foundation present Dr. Javier Oesterheld (specialty medical director of Pediatric Hematology/Oncology/BMT at Levine Children’s Hospital) with a $100,000 check to Atrium Health’s Levine’s Children’s Hospital.

CHARLOTTE, N.C. – Aug. 2, 2018 – The Isabella Santos Foundation announced today the presentation of a $100,000 donation to Atrium Health’s Levine Children’s Hospital.

The Isabella Santos Foundation’s $1 million commitment to Levine Children’s Hospital started with MIBG therapy and grew to the vision of building the ISF Rare & Solid Tumor Program at the hospital. The program will oversee care for all solid tumors, rare tumors, MIBG therapy and all related clinical and scientific research at the hospital.

“Levine Children’s Hospital is an incredible partner in helping us further our mission, so we are thrilled to present them this gift that will make a huge impact on kids with cancer,” said Erin Santos, Executive Director and President of the Isabella Santos Foundation. “We are grateful to our generous supporters for making this donation possible and for enabling us to bring leading pediatric cancer treatments to local children in our surrounding communities.”

About Atrium Health
Atrium Health, previously Carolinas HealthCare System, one of the nation’s leading and most innovative healthcare organizations, provides a full spectrum of healthcare and wellness programs throughout the Southeast region. Its diverse network of care locations includes academic medical centers, hospitals, freestanding emergency departments, physician practices, surgical and rehabilitation centers, home health agencies, nursing homes and behavioral health centers, as well as hospice and palliative care services. Atrium Health works to enhance the overall health and well-being of its communities through high-quality patient care, education and research programs, and numerous collaborative partnerships and initiatives.

About Isabella Santos Foundation

The Isabella Santos Foundation (ISF) is a 501(c)3 childhood cancer foundation dedicated to raising funds for research for neuroblastoma, other rare pediatric cancers, and charities that directly impact the lives of children with cancer. ISF was founded in honor of Isabella Santos from Charlotte, N.C. who lost her battle against neuroblastoma. ISF works to improve rare pediatric cancer treatment options in an effort to improve the survival rate of kids with cancer. For more information, visit www.isabellasantosfoundation.org  or follow ISF on Facebook (www.facebook.com/IsabellaSantosFoundation), Instagram (www.instagram.com/theisfoundation) and Twitter (www.twitter.com/TheISFoundation).

 

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CONTACT:

Jenni Walker – Walker PR Group – 980-339-8041-office/704-649-6571-cell

jenni@walkerprgroup.com

A Pedicure & A Race to Find the Cure

Contributed by Wheela Sunstrom

Jenn Andrews

Most events in our daily lives go by largely unnoticed, without incident: Trips to the grocery store.  Practices for kids’ sports teams. Extracurricular school activities. Even a trip to the nail salon. But for Jenn Andrews, the latter occurrence would send an active woman on an unexpected trajectory, dictating some life-changing decisions and adjustments.

The size of a pea.

The process of getting a pedicure is generally effortless. You pick a color, settle into a comfy seat, and slip your toes into a luxurious pool of warm water.  The overall experience is mindless, relaxing, and a welcome reprieve from an otherwise chaotic schedule.

This may explain why then-pregnant Jenn didn’t think much else when her nail technician noticed a small lump on her foot. After all, the inconspicuous bump had never been noticed prior to the pampering appointment. It was classified as untroubling in her mind, and subsequently ignored.

Myxoid sarcoma.

During Jenn’s pregnancy with Baby #2, the lump on her foot grew. And so did the news. Suddenly, the salon visit from several years before went from “treat yo’self” to “you need to be treated”…specifically for a life-threatening, cancerous tumor.

An all-too-familiar story emerged after the diagnosis and initial removal of the sarcoma; remission was followed by an unfortunate return of the tumor. Jenn, unable to run from her diagnosis, had to make a difficult call.  Surgeons would perform amputation seven weeks later.

Racing, and beyond…

Now 33-years-old, a mother of 2, and a dog-mom of 3 – there are very few things missing from Jenn’s life. Her foot is certainly not one of those things!  The prosthetic she wears is barely an inconvenience compared to living without worry of recurrence. Jenn continues to fulfill her various roles with gusto, while also  launching her foundation, Move For Jenn, raising funds for sarcoma research and for amputees needing prostheses.  

Jenn Andrews

The next big  personal challenge?  Jenn set her sights on the Isabella Santos Foundation 5K on September 29th, 2018.  It will be her first race since her surgery 5 months ago. And it will be her first run with a new prosthetic.

But Jenn isn’t just running to prove to herself and others that she can do it. While it is admirable (seriously, she’s an inspiration!), Jenn chose the ISF 5K/10K race because rare, soft-tissue cancers like myxoid sarcoma and neuroblastoma are now at the forefront of her mind, having experienced it firsthand. The word “rare” carries new meaning for her, and she realized that rare sarcomas need more attention, more research, and more funding than ever before.  It’s why she uses her situation as an opportunity to help others, and why she started her foundation.

Jenn is running for the cancers you don’t hear about often. The ones that “just don’t happen” to people like her. The ones randomly discovered by nail technicians or during routine doctor appointments. The ones that don’t have a cure. Jenn runs for people who don’t have the options she had. She runs for kids like Isabella Santos, who didn’t have options until it was too late.  And she runs for people who are out of options, and shouldn’t be.

Join the movement. Join badass inspirations like Jenn. Register for the race at: www.5kforKidsCancer.com.

MIBG Construction Update #4, Levine Children’s Hospital

MIBG Therapy Room, Patient/parent room dividing lead brick wall

Look at all the lead work that has been done since our site visit on the new ISF MIBG therapy suite at Levine Children’s Hospital…

  • Lead brick walls installed
  • Lead window frame and door frames installed
  • Lead ceiling installed
  • Reinstalling overhead utilities.

MIBG Therapy Program Lead, Dawn, shared with us that a Pediatric Grand Rounds (accredited healthcare eduction) is being held on MIBG therapy and immunotherapy tomorrow.  Many residents and other medical staff have been very inquisitive about the new room and therapy it will offer.  Dawn and Dr. Oesterheld are currently working on the formal education for residents and hospitalists that will take place in the coming months.

Signed MIBG lead brick

We are excited to learn that the lead brick that was signed at the the March 9th MIBG celebration will be placed in the wall in the coming weeks.  On this day we were joined on by our 3 Wish Circle Members and sponsors who helped us make this room a reality.  What was also special, doctors and nurses who treated Isabella during her time at Levine Children’s Hospital were  in attendance. Everyone in attendance signed a piece of Levine history as the lead brick will become part of the suite during construction.

Almost $14,000 has been raised by our ISF MIBG Ambassadors.  Want to be part of providing comfortable care for the kids/families that go through MIBG Treatment?  Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

 

MIBG Therapy Room, Patient Room Corridor Framing

 

MIBG Therapy Room, Patient Room Viewing Window

Meet ISF: Director of Corporate Philanthropy

We have a lot going on at the foundation and we are so excited when more hands join in the mix.  Meet Kerry Winslow, our new Director of Corporate Philanthropy.  Kerry has been volunteering with ISF for years and wanted to take her involvement to the next level.  And boy has she jumped right in… during her first week with ISF in June, she donated platelets for the first time ever and donated blood the next week in honor of Isabella.  Not only is she helping ISF move to the next level, she is managing the event planning for our upcoming Pumpkin Charity Ball.  Her energy and zest fit right in and we love the new perspective she is bringing.  Earlier this year ISF committed to funding $5 million to establish the Isabella Santos Foundation Rare & Solid Tumor Program at Levine Children’s Hospital. Kerry is dedicated to help us figure out how to get there and says she wanted to make a difference by being part of the impact to kids with cancer and the change to our city.

“I am inspired by hard work and grit.  One of the main reasons I decided to get involved with ISF is because I am inspired by the hard work and grit of this foundation.  The idea of a community coming together and building something that will ultimately change the landscape of pediatric oncology in our city, and our country, is truly amazing.”

A little bit about Kerry…

Do you have kids?  I have been married to my husband, David, for 20 years this August! We have 3 children David (15), Audrey (13), and Nolan (11).

What’s one thing on your bucket list?  One thing on my bucket list is to totally disconnect and spend a couple weeks exploring Greece and Italy!

What’s your favorite thing to do?  I love to travel and am always up for a quick trip to the beach or NYC.

What’s your favorite movie?  It’s a toss up between Father of the Bride and My Best Friend’s Wedding! 

What inspire you?  I am inspired by hard work and grit.  One of the main reasons I decided to get involved with ISF is because I am inspired by the hard work and grit of this foundation.  The idea of a community coming together and building something that will ultimately change the landscape of pediatric oncology in our city, and our country, is truly amazing.