Donations At Work: Update on Project:EveryChild

Your donations at work! We love when we can share ISF funded trials or program updates. In 2016, ISF awarded Project:EveryChild with $25,000 where every type of childhood cancer, no matter how rare, will be studied by more than 200+ pediatric cancer programs of The Children’s Oncology Group, as they lead the way towards better cures.
 
With the help of ISF funds, Project:Every Child has completed the following:
 
– Project:EveryChild opened at 205 member institutions across 5 countries
 
– Combined enrollment a total of 5,916 children on to the protocol.
 
– COG Biorepository at Nationwide Children’s Hospital has collected and bio-banked nearly 20,000 biospecimens which will be made available for future translational research efforts.
 
– Expected cumulative enrollment total to reach 7,000 by the end of 2017 and then somewhere in the range of 11,000 – 12,000 by the end of 2018.
 
– Protocol amendment approved by the National Cancer Institute: COG member institutions are now implementing all of Project:EveryChild’s initially envisioned components, including the collection of patient circulating tumor DNA (ctDNA) and parental DNA samples. The collection of ctDNA is especially impactful, as it has both immediate and downstream benefits that will significantly impact how all children with cancer are treated.
 
This research capability, coupled with parental DNA collection via blood and saliva samples, will have a profound impact on our understanding of the genomic changes that arise in tumors, as well our knowledge of risk factors that increase the chances of developing childhood cancer.
 
Thank you for continuing to fight cancer in Isabella’s honor. We couldn’t have helped fund this project without you!

Lake Norman Coffee for a Cure Brings in Over $35,000 for Pediatric Cancer Research

2017 Lake Norman Coffee for a Cure. Photo courtesy of Localscroll.com

Our 2nd annual Coffee for a Cure hosted by our ISF Lake Norman chapter was a huge success.  Thank you to the 250 men and women who attended and the sponsors and local businesses who gave time and money to this event.  This event served as a call to action in the fight against pediatric cancer and to educate community members on the importance of bringing pediatric cancer treatments home to Charlotte.  We were able to raise $35,000 and donations have continued to come in.  These funds bring us one step closer to our 2017 $1,000,000 fundraising goal to fund the creation of a MIBG room at Levine Children’s Hospital.

Our Lake Norman chapter could not put on such a wonderful event if it wasn’t for the support of our community businesses who help us through their sponsorship. It is through their passion for charitable giving and making a local impact that we are able to continue Isabella’s fight. Thank you to the following businesses:

2017 Lake Norman Coffee for a Cure. Photos courtesy of Localscroll.com

During the event, we introduced our new major gift society, called The Three Wish Circle, with an annual gift of $5000 or more, donors can take their support of the ISF mission to the next level by funding more research for childhood cancer and help to bring innovative treatment options to our local community.  If you have questions or want to know more about how to take your support to the next level, contact our ISF Development Director, Tia Wackerhagen.

We cannot begin to put words to how grateful that we are for the impact you are helping us make, thank you for your support.. We are so proud of what we have accomplished together and it is because of YOU. We could not do this alone and could not continue our fight without your help. We humbly thank each of you and look forward to a world with no more cancer where we will beat cancer, grow hair and live the dreams of all children fighting the fight.

We appreciate Local Scroll Charlotte for capturing the event, view all photos of the 2017 Lake Norman Coffee for a Cure.

State-of-the-art cancer treatment suite planned for Levine Children’s Hospital

We talk a lot about our $1 MILLION goal this year. Dr. Javier Oesterheld, Levine Children’s Hospital head pediatric oncologist, and Isabella’s mom were on NBC Charlotte this week to discuss the new state-of-the-art MIBG room at Levine’s that will help families with kids facing cancer. Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients.

WATCH SEGMENT HERE

What is a MIBG, why does it need a room and why is it so expensive? Read More…

2nd Annual ISF Kids T-Shirt Design Contest

2016 Design Winner

Back again!  The ISF youth t-shirt designs we received last year were so cute… we have to do it again.  Kids ages 5-12 years old are invited to submit an original logo design for the Isabella Santos Foundation 5K/10K race event.  The winning logo design will be feature on t-shirts given to all YOUTH participants at the ISF 5k/10K event.  Thank you Charlotte Eye Ear Nose & Throat Associates, P.A. for sponsoring the ISF Kids T-Shirt Design contest for a second year!

This year we were super excited to have our favorite art studio, Small Hands Big Art, host a T-Shirt Design Workshop last week to kick off the contest.  We were also super excited that it filled up immediately.  Many creative and cute designs came to life and now we are opening the contest up for emailed entries.  This being our 10th Anniversary, we are looking for a design that reflects that significance!  Parents- this is the perfect time to talk to your child about ISF, about kids fighting cancer and get them excited about participating in the 5K/10K/Fun Run event on September 30th!

The deadline for entries is Monday, August 28th.  Email scanned design to:  info@isabellasantosfoundation.org

Small Hands Big Art Design Workshop

DETAILS:

  • Ages 5-12
  • Design must be drawn by hand
  • Design must include one of the following elements:
    • ISF Girl
    • The number 10 (10th)
    • The World (earth)
  • Design must be drawn on a piece of plan white paper, 8 1/2 x 11
  • T-shits will be a shade of purple
  • Deadline for entries is Monday, August 28th.

 

LAST YEARS DESIGN SUBMISSIONS 

Upcoming ISF Volunteer Needs

We have a few events that are still in need of several volunteers .  Please click on the respective links to signup/email.  Contact Karen with questions.  We appreciate your time and passion, we could not continue our fight against childhood cancer without your dedication.
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1.   Party Like A Mother CLT, 8/18 (ISF is a beneficiary)
 
2.  Treehouse Vineyards Heritage Festival, 9/16 (ISF is a beneficiary)
  • ALL volunteers will get a t-shirt, a voucher for a bottle of wine from Treehouse Vineyards, and a swag bag!!
  • Treehouse Vineyards Heritage Festival Station Volunteer:  Email Torie if you are interested in volunteering at the various festival stations (i.e grape stomping, wine glass polishing, registration, etc…): torie@treehousevineyards.com
  • ISF Raffle and Ticket Volunteer:  Email Karen if you are interested in selling raffle tickets & working our raffle table. ISF will need 4 Volunteers each shift: kmurphy@isabellasantosfoundation.org
    • 1st Shift: 1:00 – 4:00 PM -FULL
    • 2nd Shift: 3:00 – 6:00 PM – still need 1-2 volunteers
3.  Race 13.1, 9/24
We have created an “ISF Volunteer Group” on Facebook for future opportunities & information.  ISF could not do the things we do with out the help of volunteers! By being a part of this group- you will be notified of ways that you can assist us throughout the year. Not only it is fun, but also rewarding to be part of our overall fight. We are ALL making a difference together and we would love to have you be a part of our ISF family. We hope that this group will be a fast and easy way to let you know what we have going on and where you can plug in to help. Please feel free to SHARE this page with anyone and ask as many members to join us too.

Our Little Cheerleader

One of Isabella’s favorite days of her life.
 
We LOVE the Carolina Panthers and excited to see them play in the first pre-season game tonight. Make-A-Wish Central & Western North Carolina and The Carolina Panthers Top Cats made her an honorary Top Cat for the day in November of 2011. She was low on energy but she muscled up the strength for the day. The crowd was so amazing to her and everyone on the Panthers organization laid out the red carpet for the Santos family. Her picture still hangs in the Top Cat locker room to this day.
As a previous Wish Family, we understand the importance of a child’s wish and how a wish experience can be a game-changer for a child with cancer.  The Make-A-Wish Foundation grants the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.  Over the past 10 years, ISF has donated over $143,000 to Make-A-Wish, granting over 24 wishes in the state of North Carolina.
Donate today to take action for pediatric cancer in Isabella’s honor.
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