Tory Burch Shopping Event for Isabella Santos Foundation: July 12th

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We LOVE Tory Burch here at ISF and excited that Tory Burch, SouthPark Mall is holding a shopping event benefiting ISF next Wednesday, July 12th from 6-8pm. This store has supported the foundation for several years, we appreciate our community friends who give back. 20% of the evening’s proceeds will benefit ISF and supporting the fight against childhood cancer

WEDNESDAY, JULY 12  |  6-8 PM

TORY BURCH

SOUTHPARK MALL

4400 SHARON ROAD

Please RSVP if you plan on attending          njackson15@windstream.net

100 platelet donations to celebrate Isabella’s life

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Community Blood Center of the Carolinas, CBCC, has been near and dear to our hearts since Isabella received numerous blood and platelet transfusions to help her stay strong and fight neuroblastoma.  Since Isabella passed just five years ago, CBCC has sponsored our 5K/10K & 1 mile fun run for Kids Cancer every year in honor of her.  And because CBCC helped sustain Isabella’s life while she was fighting, we host our annual Blood Drive every year on Isabella’s birthday (March 9th) and this year we will be hosting a Platelet drive in honor of her passing on June 28th, 2012.  Platelet Drive will take place Wednesday, June 21st – Wednesday, June 28th at ANY CBCC location.  Call 1-888-59BLOOD to make or email plateletdonor@cbcc.us to make your appointment today.  Help us reach our goal of 100 donations!

Many people may not know, but cancer patients are the #1 recipients of blood products.  Sharing Isabella’s story allowed CBCC to show people first-hand the importance of donating blood and hosting blood drives in our community.  Although Isabella lost her life to neuroblastoma, she would have never survived as long as she did without CBCC and the blood products she received.

A note from Martin Grable, CBCC President and CEO…

“Throughout their journey, Isabella Santos’ family has graciously allowed the Community Blood Center of the Carolinas to share her story with our community to highlight the critical importance of blood donation. But they have done so much more than that.

They have become huge supporters of CBCC, attending dozens of our events and hosting blood and platelet drives with us each year. Isabella herself personally worked to spread the word about an ISF and CBCC blood drive held at her elementary school because she so clearly understood the importance of blood donation for patients like her.

Isabella’s family is CBCC’s family, and we truly treasure the relationship we have been able to build over the years. Partnering with such a tremendously dedicated, determined and successful group of people makes what we do at CBCC even more rewarding. Together, we truly are making a difference in the lives of patients and their families in our community.

Those of us at CBCC who had the pleasure of knowing Isabella treasure the memories and miss her dearly. Those of us who were not fortunate enough to meet her remain honored to share her story as we work with ISF and others in our community to maintain a steady blood supply for patients in our local hospitals.”

Please help us honor Isabella through your platelet donation with The Community Blood Center of the Carolinas during the entire week of June 21-28…AND at ANY of their locations.

– DATES: Wednesday, June 21st – Wednesday, June 28th
– GOAL: 100 donations
– PHONE: 1-888-59BLOOD / Can call to schedule at any center
– EMAIL: plateletdonor@cbcc.us

Daddy’s home…

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June marks a significant date as it is the month that Isabella lost her fight to neuroblastoma. This year will be 5 years since we lost her to this horrible disease on June 28th, 2012. The Santos family has been through their ups and downs in dealing with losing a daughter, sister, granddaughter, great-granddaughter, niece and cousin. But as you have most likely noticed, they have persevered… and they lead the push to fight for kids with cancer in Isabella’s honor. This month we will be sharing both the happy and raw times as we celebrate Isabella’s spirt and the legacy she left behind.

Daddy’s home…

Isabella and Daddy

“With Isabella being my first child… my favorite memories ever are around my “first time” fatherhood experiences.   When Isabella learned to speak.  When she learned to walk. Seeing her guide herself around the living room table, trying to figure out how to put one foot in front of the other were so unbelievably special for me. I was just so excited for her. I’ll never forget the dash to see who could greet me first when I walked in the door. Isabella, Grant and our lab Bailey would immediately stop what they were doing and run to hug me once Erin yelled out, “Daddy’s home”. Isabella would normally muscle out the other two to reach me first. Outside of our children’s birth, those moments in which she welcomed me home will stay with me forever and remain as some of my best moments on this earth.  I will forever hear ‘Daddy’s home” in her little voice in the back of my mind and heart.” – Isabella’s Daddy

We can accomplish so much more if we fight cancer together.  Learn more about donating to the Isabella Santos Foundation.

 

Why $1,000,000?

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WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital​ and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room? 🙂

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

 
DONATE TODAY TO HELP US GET TO $1,000,000

$1,000,000 Goal for MIBG Room at Levines

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WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room?

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.