Tag Archive for: Levine Children’s Hospital

State-of-the-art cancer treatment suite planned for Levine Children’s Hospital

We talk a lot about our $1 MILLION goal this year. Dr. Javier Oesterheld, Levine Children’s Hospital head pediatric oncologist, and Isabella’s mom were on NBC Charlotte this week to discuss the new state-of-the-art MIBG room at Levine’s that will help families with kids facing cancer. Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients.

WATCH SEGMENT HERE

What is a MIBG, why does it need a room and why is it so expensive? Read More…

The heart of a budding activist

Information and photos provided by Sofia’s mom

Yesterday, current cancer fighting patient Sofia had a fun reason to visit Levine Children’s Hospital.  As Sophia’s mom put it… “Today, we were able to celebrate with our own personal super hero, Dr. Joel Kaplan (Sofia’s head oncologist), as he received a grant from Hyundai Hope on Wheels.  Bonus:  the kids got to put their handprints on his white lab coat and on a brand new car!”

Dr. Kaplan and Levine Children’s Hospital was awarded a $50,000 Impact Grant from Hyundai Hope on Wheels.  This award was presented for his proven track record in providing excellent patient care to families affected by pediatric cancer and to support his continued efforts.  We couldn’t be more thrilled with this news, Dr. Kaplan not only is Sofia’s personal super hero… he was Isabella’s as well.

Sofia was diagnosed with Acute Lymphoblastic Leukemia in January of 2016 at the age of 7.  Before cancer, she was a happy, carefree 2nd grader who played soccer, took all kinds of dance classes, loved arts, crafts, hula-hooping, American Girl dolls and playing with friends and her big brother, Sam. She was blessed with such a sweet and normal childhood.  In the last 1.5 years since our lives were turned upside down, Sofia has continually amazed us with her courage and resilience. Every day we look at her and wonder how such a small girl can possibly withstand all the endless appointments, needles, pokes, tests, chemos, medications and hospital stays without even complaining or feeling sorry for herself.  Our favorite quote that seems to sum Sofia up perfectly is “Though she be but little, she is fierce.”
Sofia is still in treatment and will continue on her chemo regimen until May 2018 for a total of nearly 2.5 years.  We are extremely grateful that she is currently doing well and we are all trying to live as normally as possible between her rounds of chemo at Levine Children’s Hospital.  Sofia has even enjoyed being back in school with her friends after being homebound for one full year.  She still loves all things artsy and creative, especially designing new outfits and accessories for her dolls. She is learning to sew and hopes to be a fashion designer when she grows up. Sofia is excited that she was recently asked to be the Leukemia & Lymphoma Society’s 2018 Charlotte Girl of the Year because she hopes to inspire people to take action in the fight against pediatric cancer.  Behind her shy exterior lies the heart of a budding activist!

$1,000,000 Goal for MIBG Room at Levines

WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room?

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

 

#ISF3Wishes Ice Cream Party, Hosted By Samantha Busch

Samantha Busch, wife of NASCAR driver Kyle Busch and Executive Director of the Kyle Busch Foundation, showed tremendous support for the Isabella Santos Foundation by coming up with the idea to host an #ISF3Wishes Ice Cream Party at Levine Children’s Hospital on June 17. Samantha dedicated the party to Isabella’s memory, and invited all of the children’s hospital patients and their families to attend.

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The event was the result of the 3 wishes Samantha tweeted to her Twitter followers in support of our #ISF3Wishes campaign to raise awareness for pediatric cancers. Her first wish was to: “Throw an ice cream party (with lots of hugs) for the kids at Levine Children’s Hospital.”

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The children’s faces lit up when they saw the roomful of ice cream and candy.

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Samantha, KBF, and their sponsors provided all of the wonderful treats.

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Our team had an amazing time serving the kids and being able to be a part of bringing smiles to their faces. We know Isabella would have loved it.

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Especially the moment Samantha received one of Isabella’s paintings as a gift and revealed that she “loves peacocks.”

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A huge thanks to Samantha Busch, the Kyle Busch Foundation, and Levine Children’s Hospital for each of their roles in making this day possible! View Samantha’s original #ISF3Wishes tweet and visit our Facebook page for more photos from the event.