Tag Archive for: Levine Children’s Hospital

A Lasting Presence

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David Lieberman, ISF MIBG Ambassador

Isabella’s presence is POWERFUL.  In David Lieberman’s case, his nieces went to Calvary with Isabella.  David’s sister-in-law shared Isabella’s story with him, and he has been involved with ISF ever since.  

First it started off that his family participated in the annual ISF 5K every year.  “It felt tremendously good to be a part of something bigger than me.”  As David’s passion grew stronger and stronger, he continued to give back to ISF on a much larger level.  Giving back to ISF is “an opportunity to play a small role in the lives of people that are dealing with pediatric cancer.”

Even though David’s family has not been affected by cancer, he has known people who have battled it during their lifetime.  “It is highly probable that cancer will take someone that I love so I am choosing to be proactive in the fight to find a cure.”

David became an ISF MIBG Ambassador, with a goal to raise $5,000 for ISF.  You can help David reach his goal by participating in his raffle.  For $20, you receive 2 raffle tickets where you have a chance to win great prizes and gift cards.  Winners are announced on November 3rd.  For more details, visit www.JoinDavidFightCancer.com.  

That’s ACTION, David, thank you for representing ISF as a MIBG Ambassador.  Isabella thanks you!

MIBG Ambassador

Levine Children’s Hospital will now be 1 of 20 hospitals (and the first in the region) to have a MIBG Treatment room in the U.S.  The two-room MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects.  As the new MIBG treatment suite continues to progress under construction, we want to ensure that we are preparing for the kids and families who will be entering this program.  New in 2018, we have developed a fundraising program focused on MIBG Therapy – the MIBG Ambassador.  Our goal for 2018 is to have 20 members collectively raising $100,000 for this initiative.  If you are interested in becoming an MIBG Ambassador, please email info@isabellasantosfoundation.org.  

Isabella Santos Foundation Presents $100,000 Check to Levine Children’s Hospital

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Left to right: Katie Winslow, Erin Santos and Karen Murphy with the Isabella Santos Foundation present Dr. Javier Oesterheld (specialty medical director of Pediatric Hematology/Oncology/BMT at Levine Children’s Hospital) with a $100,000 check to Atrium Health’s Levine’s Children’s Hospital.

CHARLOTTE, N.C. – Aug. 2, 2018 – The Isabella Santos Foundation announced today the presentation of a $100,000 donation to Atrium Health’s Levine Children’s Hospital.

The Isabella Santos Foundation’s $1 million commitment to Levine Children’s Hospital started with MIBG therapy and grew to the vision of building the ISF Rare & Solid Tumor Program at the hospital. The program will oversee care for all solid tumors, rare tumors, MIBG therapy and all related clinical and scientific research at the hospital.

“Levine Children’s Hospital is an incredible partner in helping us further our mission, so we are thrilled to present them this gift that will make a huge impact on kids with cancer,” said Erin Santos, Executive Director and President of the Isabella Santos Foundation. “We are grateful to our generous supporters for making this donation possible and for enabling us to bring leading pediatric cancer treatments to local children in our surrounding communities.”

About Atrium Health
Atrium Health, previously Carolinas HealthCare System, one of the nation’s leading and most innovative healthcare organizations, provides a full spectrum of healthcare and wellness programs throughout the Southeast region. Its diverse network of care locations includes academic medical centers, hospitals, freestanding emergency departments, physician practices, surgical and rehabilitation centers, home health agencies, nursing homes and behavioral health centers, as well as hospice and palliative care services. Atrium Health works to enhance the overall health and well-being of its communities through high-quality patient care, education and research programs, and numerous collaborative partnerships and initiatives.

About Isabella Santos Foundation

The Isabella Santos Foundation (ISF) is a 501(c)3 childhood cancer foundation dedicated to raising funds for research for neuroblastoma, other rare pediatric cancers, and charities that directly impact the lives of children with cancer. ISF was founded in honor of Isabella Santos from Charlotte, N.C. who lost her battle against neuroblastoma. ISF works to improve rare pediatric cancer treatment options in an effort to improve the survival rate of kids with cancer. For more information, visit www.isabellasantosfoundation.org  or follow ISF on Facebook (www.facebook.com/IsabellaSantosFoundation), Instagram (www.instagram.com/theisfoundation) and Twitter (www.twitter.com/TheISFoundation).

 

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CONTACT:

Jenni Walker – Walker PR Group – 980-339-8041-office/704-649-6571-cell

jenni@walkerprgroup.com

MIBG Construction Update #4, Levine Children’s Hospital

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MIBG Therapy Room, Patient/parent room dividing lead brick wall

Look at all the lead work that has been done since our site visit on the new ISF MIBG therapy suite at Levine Children’s Hospital…

  • Lead brick walls installed
  • Lead window frame and door frames installed
  • Lead ceiling installed
  • Reinstalling overhead utilities.

MIBG Therapy Program Lead, Dawn, shared with us that a Pediatric Grand Rounds (accredited healthcare eduction) is being held on MIBG therapy and immunotherapy tomorrow.  Many residents and other medical staff have been very inquisitive about the new room and therapy it will offer.  Dawn and Dr. Oesterheld are currently working on the formal education for residents and hospitalists that will take place in the coming months.

Signed MIBG lead brick

We are excited to learn that the lead brick that was signed at the the March 9th MIBG celebration will be placed in the wall in the coming weeks.  On this day we were joined on by our 3 Wish Circle Members and sponsors who helped us make this room a reality.  What was also special, doctors and nurses who treated Isabella during her time at Levine Children’s Hospital were  in attendance. Everyone in attendance signed a piece of Levine history as the lead brick will become part of the suite during construction.

Almost $14,000 has been raised by our ISF MIBG Ambassadors.  Want to be part of providing comfortable care for the kids/families that go through MIBG Treatment?  Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

Learn more about MIBG Therapy and what’s coming to Levine Children’s Hospital.

 

MIBG Therapy Room, Patient Room Corridor Framing

 

MIBG Therapy Room, Patient Room Viewing Window

ISF MIBG Ambassador: Creative Fundraising

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MIBG Ambassador Charity Salon Night

Our fundraisers are getting creative… and we love it! Courtney, a first-time ISF fundraiser committed to become an MIBG Ambassador this year. Last night she hosted a charity salon night at Petals Nails & Brow Boutique who generously offered to extend the hours of their salon and donate 20% of their sales for the evening. Girls night out, pedis, manis, wine, sweets and a few prizes… Courtney raised $550! Thank you Courtney for the creative fundraising idea, thoughtful touches on the evening, and thank you Petals Nail & Brow Boutique for supporting our community.

With the ISF MIBG Therapy Suite currently under construction at Levine Children’s, our MIBG Ambassadors are busy fundraising to ensure that we are preparing for the kids and families who will be entering this program. Learn more about what it means to become an MIBG Ambassador and how you can directly impact a child being treated with cancer.

MIBG Construction Update #3, Levine Children’s Hospital

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Holy cow what a cool morning. Earlier today our team visited the ISF MIBG construction site at Levine Children’s. To set foot into the pediatric cancer therapy site that your dollars support is surreal!

In the pictures you will see a couple of things. The space on the right will be the patient room, the space on the left will be the parent/guardian room… in between you will notice a large steel door frame where the lead lined door will be placed. The huge structural steel beams have been set underneath the floors and on the ceiling… these are required to hold the weight of the lead bricks that are encompassing the room to protect and manage the MIBG Therapy safely for both patients, family and staff. Lead bricks have been installed partially on one wall. (Insider scoop: the construction team may or may not have broken two elevators getting them up to the 11th floor. That’s how heavy the lead bricks are.)

It was impressive to learn that the lead lined doors and windows will be thicker than any other MIBG Therapy room doors/windows in the country which will provide the best radiation protection during this cancer therapy. Looking forward to sharing these pictures.

The LCH team is getting ready prepping. Nurse Dawn, MIBG Therapy Program Director, has been super busy creating program materials, administering the core nursing education, and have learned from support staff such as radiation safety, child life specialists and bone marrow transplant coordinators. The MIBG nursing team has had a conference call with Nationwide Children’s Hospital where they were given the opportunity to ask experienced MIBG nurses what they have learned, what they would change, their fears, ect. That’s pretty cool.

We are looking for individuals who want to be part of providing comfortable care for the kids/families that go through MIBG Treatment. Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

Learn more about MIBG Therapy and what’s coming to Levine Children’s Hospital.