Tag Archive for: childhood cancer

#WishWednesday: American Girl Gifts

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The Isabella Santos Foundation September 5k/10/Fun Run for Kids Cancer event is approaching fast on September 29th, 2018.  We hold this event in September for one reason… to raise awareness for pediatric cancer awareness month and push YOU to take action.  Last year we had almost 3,000 participants and raised close to $380,000!   This event was started in honor of one girl’s fight against neuroblastoma and we love to see how it continues to grow each year in her honor.  The proceeds from this event support our foundation’s commitment to establish the Isabella Santos Foundation Rare & Solid Tumor Program at Levine Children’s Hospital, a $5 million commitment.

Every year our Auction Committee works tooth on one of our most coveted race day activities, the ISF Auction & Raffle.  We pride ourselves in creating one of the best ISF Auction & Raffles in the city.  But we can’t do it without our generous supporters and businesses.  Are you willing to help us create a must-have package?

Isabella and her American Girl Doll

Isabella didn’t go many places without her American Girl dolls… even at the hospital receiving blood products as pictured here! Isabella spent hours dressing her dolls and picking out their outfits.  They were her comfort items during childhood cancer treatments.

For today’s Wish Wednesday ask we are requesting all things American Girl for our upcoming auction at our 11th Annual 5k/10k For Kids Cancer event. Anything American Girl is appreciated: gift cards, dolls, outfits and accessories. These dolls brought so much joy to Isabella, help us bring joy to another little girl in her honor!

Mail to:

Melanie Miller/ISF Auction Chair
9930 Hazelview Drive
Charlotte 28277

MIBG Construction Update #4, Levine Children’s Hospital

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MIBG Therapy Room, Patient/parent room dividing lead brick wall

Look at all the lead work that has been done since our site visit on the new ISF MIBG therapy suite at Levine Children’s Hospital…

  • Lead brick walls installed
  • Lead window frame and door frames installed
  • Lead ceiling installed
  • Reinstalling overhead utilities.

MIBG Therapy Program Lead, Dawn, shared with us that a Pediatric Grand Rounds (accredited healthcare eduction) is being held on MIBG therapy and immunotherapy tomorrow.  Many residents and other medical staff have been very inquisitive about the new room and therapy it will offer.  Dawn and Dr. Oesterheld are currently working on the formal education for residents and hospitalists that will take place in the coming months.

Signed MIBG lead brick

We are excited to learn that the lead brick that was signed at the the March 9th MIBG celebration will be placed in the wall in the coming weeks.  On this day we were joined on by our 3 Wish Circle Members and sponsors who helped us make this room a reality.  What was also special, doctors and nurses who treated Isabella during her time at Levine Children’s Hospital were  in attendance. Everyone in attendance signed a piece of Levine history as the lead brick will become part of the suite during construction.

Almost $14,000 has been raised by our ISF MIBG Ambassadors.  Want to be part of providing comfortable care for the kids/families that go through MIBG Treatment?  Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

Learn more about MIBG Therapy and what’s coming to Levine Children’s Hospital.

 

MIBG Therapy Room, Patient Room Corridor Framing

 

MIBG Therapy Room, Patient Room Viewing Window

Making Goals Together

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“I never knew the benefit of running with a group until I joined the Isabella Santos Foundation Dream Team.  I started running 5 years ago when a friend challenged me to run a 5k.  When I realized I could do it, I had the desire to improve.  However, it takes a lot of self-motivation to stay on track.  And it kind of gets boring when you are running by yourself and achieving a goal when no one else is aware of it.  

I “ran” across the Isabella Santos Foundation Dream Team 3 years ago.  I decided to attend a group run one day, and the rest is history.  I was pushed to be healthy.  I was motivated to run and cross train.  I learned how to properly train for a race.  I could not let anyone down so I tried to attend every Saturday morning group run.  I looked forward to the reward at the end of our Saturday runs –  Clean Juice with a new group of friends. But most importantly, it was incredible to see everyone cheer each other on when you are accomplishing your goals.  You celebrated together.  You laughed together.  You smiled together.  There’s no better feeling than to accomplish a personal goal and share it with others. 

I achieved a personal record on a half marathon in Fall 2017, and I never ever thought I could do it.  I owe it all to the ISF Dream Team.  There is no way I could have achieved this goal without everyone’s support, pushing me to improve my performance, and cheering me on.  I am forever grateful that I am a part of the ISF Dream Team.  

It’s not too late to join the Isabella Santos Foundation Dream Team.  I promise, you won’t regret it.” 

– Tammy Lowry

ISF Dream Team

The ISF Dream Team, created in 2014, is a running group that assists you in training to run the race of your dreams.  You can train for a 5k, 10k, half marathon, half marathon relay, full marathon relay, or a full marathon.  You are provided a training schedule, invited to group runs, and inspired by a phenomenal team of people.  Not only will you meet a dynamic group of people, but you will also be inspired through your friends and family as they support you through the training.  The ISF Dream Team has raised over $400,000 to date, with the funds contributing to our local Charlotte community.  If you want to join the ISF Dream Team, we would love to hear from you.  Please email us at info@isabellasantosfoundation.org.

ISF MIBG Ambassador: Creative Fundraising

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MIBG Ambassador Charity Salon Night

Our fundraisers are getting creative… and we love it! Courtney, a first-time ISF fundraiser committed to become an MIBG Ambassador this year. Last night she hosted a charity salon night at Petals Nails & Brow Boutique who generously offered to extend the hours of their salon and donate 20% of their sales for the evening. Girls night out, pedis, manis, wine, sweets and a few prizes… Courtney raised $550! Thank you Courtney for the creative fundraising idea, thoughtful touches on the evening, and thank you Petals Nail & Brow Boutique for supporting our community.

With the ISF MIBG Therapy Suite currently under construction at Levine Children’s, our MIBG Ambassadors are busy fundraising to ensure that we are preparing for the kids and families who will be entering this program. Learn more about what it means to become an MIBG Ambassador and how you can directly impact a child being treated with cancer.

MIBG Construction Update #3, Levine Children’s Hospital

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Holy cow what a cool morning. Earlier today our team visited the ISF MIBG construction site at Levine Children’s. To set foot into the pediatric cancer therapy site that your dollars support is surreal!

In the pictures you will see a couple of things. The space on the right will be the patient room, the space on the left will be the parent/guardian room… in between you will notice a large steel door frame where the lead lined door will be placed. The huge structural steel beams have been set underneath the floors and on the ceiling… these are required to hold the weight of the lead bricks that are encompassing the room to protect and manage the MIBG Therapy safely for both patients, family and staff. Lead bricks have been installed partially on one wall. (Insider scoop: the construction team may or may not have broken two elevators getting them up to the 11th floor. That’s how heavy the lead bricks are.)

It was impressive to learn that the lead lined doors and windows will be thicker than any other MIBG Therapy room doors/windows in the country which will provide the best radiation protection during this cancer therapy. Looking forward to sharing these pictures.

The LCH team is getting ready prepping. Nurse Dawn, MIBG Therapy Program Director, has been super busy creating program materials, administering the core nursing education, and have learned from support staff such as radiation safety, child life specialists and bone marrow transplant coordinators. The MIBG nursing team has had a conference call with Nationwide Children’s Hospital where they were given the opportunity to ask experienced MIBG nurses what they have learned, what they would change, their fears, ect. That’s pretty cool.

We are looking for individuals who want to be part of providing comfortable care for the kids/families that go through MIBG Treatment. Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

Learn more about MIBG Therapy and what’s coming to Levine Children’s Hospital.