Dear JEM Project: Thank You for Your Contribution To Our Goal of Finding a Cure

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It’s hard to put into words how grateful we are for the impact The JEM Project’s $250,000 donation to ISF is creating for kids fighting rare pediatric cancer and for our community.  Follow along this week as we share ‘Thank You’ letters from many of those who feel the incredible significance of their gift.

Thank you to Madison’s Dad, Mickey, for sharing is thanks…

Dear JEM Foundation,

I first want to send my sincerest thanks for your generous giving to a cause that is so important to my family.

Madison was to so many people, different things. To me she was the best part of me. She was the person, at seven, that I wish I could be: kind, full of life, and never knew a stranger. She lived life to the fullest……

That was cut short and it is devastating to my family. Through research and grants my family hope and pray that others will not have to go through what we have. Some day families will have better outcomes. Those days are coming sooner with generous gifts to research and we truly appreciate your contribution to our goal of finding a cure.

Thank you again,

MIchael, Madison’s Dad

Isabella Santos Foundation Receives $250,000 Gift by The JEM Foundation

Dear JEM Project: Your donation is Giving Children Fighting Cancer Time

Dear JEM Project: Thank You for Being the Team Who Kept Madison’s & ISF’s Mission on Course

#1065SUBSELFIE Contest for a Chance to Meet Young the Giant & Fitz and The Tantrums

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#1065SUBSELFIE CONTEST: Not only will you get a delicious lunch or dinner from Jersey Mike’s while helping a great cause, 106.5 wants to sweeten the deal for you. You could win two tickets to 106.5 The End’s Woody & Wilcox’s Summer Camp and a meet & greet with Young The Giant and Fitz and The Tantrums!

  1. Take a selfie with a Jersey Mike’s logo
  2. Post it on Facebook, Twitter or Instagram
  3. Use #1065SubSelfie and tag @1065TheEND

Complete the above 3 steps and your qualified to win!  The more you post, the more chances you have to win!

View Month of Giving details, weekly coupons and greater Charlotte’s 39 participating locations.  Eat at participating stores to help fund rare pediatric cancer research.

The contest is open March 1, 2019 through March 27, 2019.

A Lasting Presence

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David Lieberman, ISF MIBG Ambassador

Isabella’s presence is POWERFUL.  In David Lieberman’s case, his nieces went to Calvary with Isabella.  David’s sister-in-law shared Isabella’s story with him, and he has been involved with ISF ever since.  

First it started off that his family participated in the annual ISF 5K every year.  “It felt tremendously good to be a part of something bigger than me.”  As David’s passion grew stronger and stronger, he continued to give back to ISF on a much larger level.  Giving back to ISF is “an opportunity to play a small role in the lives of people that are dealing with pediatric cancer.”

Even though David’s family has not been affected by cancer, he has known people who have battled it during their lifetime.  “It is highly probable that cancer will take someone that I love so I am choosing to be proactive in the fight to find a cure.”

David became an ISF MIBG Ambassador, with a goal to raise $5,000 for ISF.  You can help David reach his goal by participating in his raffle.  For $20, you receive 2 raffle tickets where you have a chance to win great prizes and gift cards.  Winners are announced on November 3rd.  For more details, visit www.JoinDavidFightCancer.com.  

That’s ACTION, David, thank you for representing ISF as a MIBG Ambassador.  Isabella thanks you!

MIBG Ambassador

Levine Children’s Hospital will now be 1 of 20 hospitals (and the first in the region) to have a MIBG Treatment room in the U.S.  The two-room MIBG suite, which will include a lead-lined patient room and an anteroom for parents and caregivers, will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects.  As the new MIBG treatment suite continues to progress under construction, we want to ensure that we are preparing for the kids and families who will be entering this program.  New in 2018, we have developed a fundraising program focused on MIBG Therapy – the MIBG Ambassador.  Our goal for 2018 is to have 20 members collectively raising $100,000 for this initiative.  If you are interested in becoming an MIBG Ambassador, please email info@isabellasantosfoundation.org.  

MIBG Construction Update #5, Levine Children’s Hospital

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MIBG Therapy Room, Patient/parent room dividing lead brick wall with ISF signed brick

25,000 lbs of lead bricks… that’s a whole lot of lead. But that is the necessary requirements to protect and manage MIBG Therapy safely for patients, family and staff.  Construction of the ISF MIBG Treatment Suite at Levine Children’s Hospital is progressing on schedule.  We got another peak at the room and how far it has come since we were there in early July and got to talk with MIBG Therapy Program Lead, Dawn, about her MIBG training and mock trial plans once construction wraps up. We are getting close!

10,000 pounds of lead brick has been installed in the adjoining wall between the patient and parent room.  Back in March when we announced the Therapy Suite, many of our 3 Wish Circle Members and sponsors signed a lead brick to commemorate the significance of their part in bringing this type of therapy to our region.  What was also special, doctors and nurses who treated Isabella during her time at Levine Children’s Hospital were in attendance and signed the brick.  We were excited to see where the ISF signed lead brick will be placed in the patient/parent room dividing wall (white brick in photo)… drywall goes up next week and it will become a lasting print in Levine History!

UPDATE:

  • Patient & parent bathroom framing
  • Plumbing install
  • ISF signed lead brick placement
  • Drywall starts next week

MIBG CONSTRUCTION UPDATES & PROGRESS PHOTOS

Over $21,000 has been raised by our ISF MIBG Ambassadors.  Want to be part of providing comfortable care for the kids/families that go through MIBG Treatment?  Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}

MIBG Therapy Room, Patient bathroom framing

MIBG Therapy Room, ISF signed lead brick

 

 

MIBG Therapy Room, ISF signed lead brick. Dawn Bartock & Rachel Wood

MIBG Therapy Room, Patient lead brick wall

MIBG Therapy Room, entrance to patient room. Parent door to the left

It’s National Running Day

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For National Running Day we are offering a $5 off coupon for our 10th Annual 5k/10k For Kids Cancer on September 30th. Take advantage and get signed up today! Discount available ONE DAY ONLY (June 7th).