The “C” Word

Ashley & Brian, Isabella’s Dream Team

The “C” word.  Cancer.  All of us have been affected by cancer . . . . someway, somehow in our lives.  It could be your best friend.  Your neighbor.  Your colleague.  Your mom.  Your brother.  Your wife. Your child.  Regardless of how you have been affected by the “C” word in your life, it isn’t easy.

Ashley Allred has been affected by cancer in her life.  Her first grade teacher was diagnosed with cancer.  Her second grade teacher was diagnosed with breast cancer and unfortunately lost her battle when she was in third grade.  Her mom was diagnosed with breast cancer.  And then Ashley became a teacher herself… her student was diagnosed with cancer.  It has affected Ashley too many times to count.  She decided it was time to find a way to give back and help find a cure.

Ashley found out about the Isabella Santos Foundation through her elementary school student.  Not only was it a way to support her student, but she could also help raise awareness and funds for pediatric cancer. She joined the Isabella’s Dream Team in 2017, training to run a half marathon while raising money for pediatric cancer.  Now, she is helping lead the ISF Dream Team, training to run another race, raising money for pediatric cancer through her connections and creative partnerships, and she is making a difference.  

If you want to honor someone in your life who has been affected by cancer, you can help make a difference too.  It’s not too late to join the Dream Team. 

ISF Dream Team

The ISF Dream Team, created in 2014, is a running group that assists you in training to run the race of your dreams.  You can train for a 5k, 10k, half marathon, half marathon relay, full marathon relay, or a full marathon.  You are provided a training schedule, invited to group runs, and inspired by a phenomenal team of people.  Not only will you meet a dynamic group of people, but you will also be inspired through your friends and family as they support you through the training.  The ISF Dream Team has raised over $400,000 to date, with the funds contributing to our local Charlotte pediatric cancer community.  If you want to join the ISF Dream Team, we would love to hear from you.  Please email us at info@isabellasantosfoundation.org.

Making Goals Together

“I never knew the benefit of running with a group until I joined the Isabella Santos Foundation Dream Team.  I started running 5 years ago when a friend challenged me to run a 5k.  When I realized I could do it, I had the desire to improve.  However, it takes a lot of self-motivation to stay on track.  And it kind of gets boring when you are running by yourself and achieving a goal when no one else is aware of it.  

I “ran” across the Isabella Santos Foundation Dream Team 3 years ago.  I decided to attend a group run one day, and the rest is history.  I was pushed to be healthy.  I was motivated to run and cross train.  I learned how to properly train for a race.  I could not let anyone down so I tried to attend every Saturday morning group run.  I looked forward to the reward at the end of our Saturday runs –  Clean Juice with a new group of friends. But most importantly, it was incredible to see everyone cheer each other on when you are accomplishing your goals.  You celebrated together.  You laughed together.  You smiled together.  There’s no better feeling than to accomplish a personal goal and share it with others. 

I achieved a personal record on a half marathon in Fall 2017, and I never ever thought I could do it.  I owe it all to the ISF Dream Team.  There is no way I could have achieved this goal without everyone’s support, pushing me to improve my performance, and cheering me on.  I am forever grateful that I am a part of the ISF Dream Team.  

It’s not too late to join the Isabella Santos Foundation Dream Team.  I promise, you won’t regret it.” 

– Tammy Lowry

ISF Dream Team

The ISF Dream Team, created in 2014, is a running group that assists you in training to run the race of your dreams.  You can train for a 5k, 10k, half marathon, half marathon relay, full marathon relay, or a full marathon.  You are provided a training schedule, invited to group runs, and inspired by a phenomenal team of people.  Not only will you meet a dynamic group of people, but you will also be inspired through your friends and family as they support you through the training.  The ISF Dream Team has raised over $400,000 to date, with the funds contributing to our local Charlotte community.  If you want to join the ISF Dream Team, we would love to hear from you.  Please email us at info@isabellasantosfoundation.org.

Meet ISF: Director of Corporate Philanthropy

We have a lot going on at the foundation and we are so excited when more hands join in the mix.  Meet Kerry Winslow, our new Director of Corporate Philanthropy.  Kerry has been volunteering with ISF for years and wanted to take her involvement to the next level.  And boy has she jumped right in… during her first week with ISF in June, she donated platelets for the first time ever and donated blood the next week in honor of Isabella.  Not only is she helping ISF move to the next level, she is managing the event planning for our upcoming Pumpkin Charity Ball.  Her energy and zest fit right in and we love the new perspective she is bringing.  Earlier this year ISF committed to funding $5 million to establish the Isabella Santos Foundation Rare & Solid Tumor Program at Levine Children’s Hospital. Kerry is dedicated to help us figure out how to get there and says she wanted to make a difference by being part of the impact to kids with cancer and the change to our city.

“I am inspired by hard work and grit.  One of the main reasons I decided to get involved with ISF is because I am inspired by the hard work and grit of this foundation.  The idea of a community coming together and building something that will ultimately change the landscape of pediatric oncology in our city, and our country, is truly amazing.”

A little bit about Kerry…

Do you have kids?  I have been married to my husband, David, for 20 years this August! We have 3 children David (15), Audrey (13), and Nolan (11).

What’s one thing on your bucket list?  One thing on my bucket list is to totally disconnect and spend a couple weeks exploring Greece and Italy!

What’s your favorite thing to do?  I love to travel and am always up for a quick trip to the beach or NYC.

What’s your favorite movie?  It’s a toss up between Father of the Bride and My Best Friend’s Wedding! 

What inspire you?  I am inspired by hard work and grit.  One of the main reasons I decided to get involved with ISF is because I am inspired by the hard work and grit of this foundation.  The idea of a community coming together and building something that will ultimately change the landscape of pediatric oncology in our city, and our country, is truly amazing.

She Left Us Before 10

Cancer Stole My Sister

Isabella was diagnosed with Neuroblastoma just 6 days after my 1st birthday so I never really knew her without cancer.  My Mom and Dad tell me stories all the time about my life with her.  We did everything together and I brought so much comfort to her when no one else could.  I would come and visit her in the hospital and crawl right up in bed with her as we would watch movies and laugh while we ate dinner together in her bed.  I would walk around the hospital with her as Mom wheeled her IV pole up and down the hallways.  She would show me around and introduce me to everyone.   She was so proud of me.  We took so many trips together.  We loved going to Disney World and running from ride to ride as we got to meet every Disney Character you could imagine.  We had special days at with the Panthers and got to meet people like Steve Smith, Tony Stewart and more.  Our whole family moved to New York City for a couple of months with Isabella got cancer in her brain.  We stayed in an apartment that overlooked the city.  I would play trains all day long while I waited on Isabella to finish treatment, then she would come home and Mom would take us to the park and play for hours.  People would always look at Isabella in a weird way because she had a big scar on her bald head but I never even noticed it on her.  To me she was always beautiful.  For the years during Isabella’s treatment, I became her best friend.  She would always ask me to hold her hand when she would get her line put in her chest.  It was hard for me to watch, but I knew that she needed me and I would help her be strong.  Near the end of her life, she didn’t want to be around very many people.  But, I was always allowed to be around her.   She would let me crawl in bed with her and watch movies and rub her back.  She would ask about my day and I would tell her all the things I did and she would tell me about her day at home or in the hospital.  We would wrestle with Daddy and laugh and sing at night together before we crawled in bed each night.

These are all stories that my Mom and Dad tell me.  But I don’t really remember them.  I’m thankful for pictures and videos that tell me this story too, and I hope one day these memories become more real to me.  I remember her red hair, and how she said my name “Graaaant” when she would call for me.  I remember she like Taylor Swift and Ariel and American Girl dolls.  I remember the day she died.  I was at a summer camp and my Grandma came to pick me up.  I remember coming into Mom and Dad’s room and she was asleep in their bed and I told her goodbye and that I loved her.  I remember going to Calvary for her funeral and that my cousins were there and Miss Chrissy read a poem.  But I don’t remember much more than that.

It’s crazy to think that we were best friends, but I can’t remember it.  But that is what pediatric cancer does.  It steals people from you.  It steals sons and daughters, it steals brothers and sisters, it steals best friends.  It also steals the possibility of creating memories.  Cancer stole my sister, my best friend and a lifetime of memories that we were supposed to make together.  We were supposed to be in high school together and be at each other’s college graduations and weddings.  We were supposed to be aunts and uncles to each others kids and our kids were going to be cousins who would go to the beach together.  We were supposed to be able to call each other and complain about Mom and Dad and have secrets between us that we would never tell them.  But none of that will happen.

Now, the only way I can be the best brother I can be is to bring her flowers to her site and talk to her in my mind.  But the other thing I can do is help to find a cure for the disease that took her from me.  My gift to her to prevent someone else losing their best friend too.  She should still be here with me today, riding the bus to school, laughing, playing and fighting – the way that brothers and sisters were meant to be.  But she’s not.

I hope that you will give today in honor of my best friend and sister Isabella.  Together we can make a difference and stop this awful disease from taking one more kid from a family.  I know she is looking down on us and is hopefully proud of the brother that I’m still trying and will always be to be to her.  I miss her so much.

– Grant Santos, Isabella’s Brother

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It started with a girl. And she is changing the world. June 28th will mark the 6th anniversary of Isabella’s passing. Please help us near and far keep Isabella’s legacy alive.
 
– Make a donation: donateisf.org
– Participate in our Sept 5K/10K: 5kforkidscancer.com
– Sign up as a MIBG Ambassador: https://bit.ly/2MsUQdm
– Sign up for Isabella’s Dream team: https://bit.ly/2smlhqh
– Participate in our CBCC platelet drive June 21-28: https://bit.ly/2sVjafX