ISF Funds Frontline MIBG Therapy with the Children’s Oncology Group

In this picture is Isabella in MIBG therapy at CHOPT in Philadelphia. Isabella not only received this as a end of life treatment instead of a frontline therapy… she had to travel away from her home and family to receive it. This will be a game changer for kids fighting.

In 2016, funded a Frontline MIBG Therapy project with the Children’s Oncology Group (COG). The purpose of this project was to determine the effectiveness of pulling MIBG therapy, which was traditionally used as an end of life treatment, to the frontline of therapy for children with high-risk Neuroblastoma. We are excited to announce, thanks to your donations – this trial is ready for children across the country. Starting in August of 2018, the COG will start the process of enrolling over 800 children with high-risk Neuroblastoma and will enroll children over the next 3 years. Tomorrow night, Dr. Peter Adamson, Chair of the Children’s Oncology Group, will be with us here is Charlotte to speak at a private event about the advancement of the program. Can’t wait to share more updates.

This is great news for Charlotte because as you know, ISF has agreed to fund the creation of a MIBG at Levine Children’s Hospital! We are inching towards our goal of $1 MILLION DOLLARS and anticipate breaking ground in 2018. What this means is that in just one year, our local children will benefit from a trial that YOU supported in a room that YOU built. This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. Amazing.

This is due to your support. So thank you. Children of Charlotte thank you.

We were so proud to have been able to donate a total of $175,000 to the COG through three of their children’s cancer trials and programs.  Learn more about the programs YOU helped us fund through the COG.

Join Us: #BobAwardsCLT

Since 1999, Charlotte magazine has dedicated its May issue to the BEST OF THE BEST, a.k.a. the BOB awards.  These awards recognize the city’s finest in food and drink, nightlife, entertainment, shopping, mind and body, and more–hundreds of winners in all. And then they throw a huge PARTY! Isabella Santos Foundation is excited to be their non-profit partner.

ATTEND THE 2017 BOB AWARDS PARTY

Attendees will enjoy delicious food samples from BOB Award-winning restaurants, complimentary beer from Lenny Boy Brewing Co., carnival games, live entertainment, and more! They also bringing back their BOB-Award Winner auction benefiting the Isabella Santos Foundation as their charity partner.

VIP tickets include: Early entry at 6:30p.m., access to the Diamonds Direct VIP lounge and drink tickets for the VIP bar. PLUS, BOB Award winning mixologist Bob Peters of The Punch Room, will be crafting a signature cocktail exclusively for the VIP lounge.

Thursday, June 8th, 2017
7:00—10:00 p.m.
at The Underground
-820 Hamilton St.-

TICKETS ON SALE NOW

General admission tickets – $40

VIP tickets – $85 and include early entry at 6:30 p.m., access to the Diamonds Direct VIP lounge and 4 drink tickets for the bar. PLUS, BOB Award-winning mixologist Bob Peters of The Punch Room will be crafting a signature cocktail exclusively in the Diamonds Direct VIP lounge for VIP ticket holders.

PURCHASE TICKETS:
www.charlottebobawards.com

The 2017 BOB Award winners were featured in Charlotte Magazine’s May issue, which is on news stands now. You can also purchase a copy here.

First Quarter Fundraising Update

We are excited to announce that The Isabella Santos Foundation has raised $260,000 in the 1st quarter of 2017. We have set a goal of raising ONE MILLION DOLLARS in 2017 for our 10th anniversary.  Your support will help us get our message of hope to more people than ever before and generate much needed research and treatment options to eradicate childhood cancers.
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It’s amazing to look back on where we were 6 years ago before Isabella passed away…   “I’m proud of our team and what we have done. Not only do we have the uphill battle every day but we do it in our own style and manage to keep it together the best we can. Not to mention the fact that while running uphill we have managed to raise close to $150,000 for various charities, mainly Neuroblastoma research. My mom and I were talking recently and my mom was saying how hard it is for her to understand all the good that Isabella brings to other people’s lives but how she has to suffer in the process. I’ve always struggled with this as well as I watch other children get to do all the “normal” things of childhood while she is hooked up to toxic treatments. But after thinking about it, I think of all the people in history that have suffered. But through their suffering, it brought something good. Maybe she is just one of those people in our lives that takes the bullet to make us all better people. Or maybe her suffering will help raise awareness and funds that will one day CURE all children. Who knows.” – Isabella’s Mommy, 2011
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Thank you to everyone for their passion and support.  It’s pretty darn incredible how far we have come.  We can accomplish so much if we fight cancer together.