Why I am Not a Nut Job

Written by Erin Santos, Isabella’s Mommy & President of The Isabella Santos Foundation

DAy 9Day 9
Why I’m not a nut job…

September comes around and I feel the urge to write. There is so much stuff out there written this month for Childhood Cancer Awareness month. Some of it applies to my situation, but some of it doesn’t. Some of it is weird. Hell, my writings are probably weird. But they are relevant to me because they are my life stories. However, they are not my every day life stories.

I get to log in and see all the great comments of Facebook when we push these blogs. Everyone is so positive and supportive on each of my posts. One common theme though seems to be worry about my mental state. I get it. I realize that I must sounds like a complete nut job in these posts. Truth is though; these posts represent about 5% of what is going on my brain. I just pull them out this month and talk about them openly with total strangers. Okay, maybe that is a little bit of nut job behavior.

Every day I am honestly just living my life. There are plenty of days that go by where I don’t think about the horrible movie I was in. I’m like most of you who think about work, or what the kids have going on today, or where I left those expensive pair of jeans I just bought, or which guy the Bachelorette is going to end up with. I’m able to walk by her room without thinking too much about either. Her room has been vacant now for 3 years, which is longer than she even lived in it. Sophia is growing out of the last remaining bit of her clothes, so unless I’m looking for something specific, her items are finally being filled away.

I’ve even seen her pictures so many times through the Foundation that they are beginning to seem like those pictures that come free in frames of people laughing and enjoying their lives. I have to remind myself that it is Isabella in that photo or better yet her and I in that photo, otherwise I tend to walk right past it. The only pictures that get me are the ones that catch me off guard that I have never seen or forget that I took. Those rattle me.

When you see me out and about, I look normal. I act normal. I seem normal. Actually, I’m starting to feel normal. I know the times of year when I can be a nut job and I tend to keep those days very hidden from the public. Her birthday is hard; the day she passed away seems even harder. Holidays are getting easier. I find that I even hide out less at the race; I’m actually out mingling with the masses. Where as years ago, I was hiding under the silent auction tables. ☺

I think my every day grief has presented itself in the form of little ticks I have. Loud noises, high anxiety and losing the need to have people or touch in my life. I’m a little closed off, I don’t like to meet new people and I’m incapable of small talk. I crave being alone and could days without talking to anyone. But honestly, I think those are just issues that I’m developing as I’m getting older. Not sure if those have much to do with grief. That’s just normal Erin nut job stuff.

So while it may seem that I’m about to jump off a cliff during these posts, just know that it’s a moment in time for me and I’m really just sitting here on Facebook, eating a turkey sandwich still in my pajamas like the rest of you.

-Isabella’s mommy

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