Voices of Childhood Cancer:  Just to be a Kid Again

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Voices of Childhood Cancer:  Just to be a Kid Again

Written by Rachel Wood, Director of Marketing

Listen to the voices of childhood cancer this month.  Every experience is different.  These stories of hope and healing start with your compassion and generosity.  Your donation helps us reach farther and move faster to develop improved treatments and promising cures for kids with rare cancers. Be childhood cancer aware.  Take action. [Presented by Atrium Health Levine Children’s]

  • Patient: Brooklyn, 10 Years Old
  • Cancer:  Embryonal Rhabdomyosarcoma, Stage 3 Group 3
  • Diagnosed: October 2020
  • Treated at: Atrium Health Levine Children’s

After a month of pneumonia-like symptoms, Brooklyn was diagnosed with Embryonal Rhabdomyosarcoma in October of 2020.  A tumor was discovered in her right lung, an extremely rare location for Rhabdomyosarcoma to originate from. Since her cancer diagnosis, she has endured 42 weeks of chemo, 23 days of radiation, 5 surgeries, countless in-patient hospital stays, and a feeding tube placement due to weight loss.

“These last few months have been extra hard on her, but the last two weeks have been the hardest. Her last two chemotherapy infusions really hit her hard and she can’t seem to recover. She has been so sick and has only had 2 good days out of the last 14.  Her body just can’t handle much more.

Brooklyn desperately wants to return to her normal life of being a 10-year-old girl in the 5th grade. She wants to play with her 3 sisters and her puppy without getting tired and feeling sick. She wants to go back to school and enjoy her time left in elementary school and see all of her friends, classmates, and teachers. She wants to be able to do all the things that any normal child gets to do.”

After successful removal of the tumor, Brooklyn has been declared NED (no evidence of disease.  But Rhabdomyosarcoma is notorious for relapse due to its fast-growing nature, so the treatment is just as intense.

Last week Brooklyn completed 42 weeks of her aggressive chemotherapy regimen.  This intensive treatment to her body over such a long time period has lead to many side effects including mouth sores, ongoing fevers, nausea and stomach cramps, rapid heartbeat, severe nose bleeds, and neuropathy in her legs. Before Brooklyn moves on to the next phase in her treatment, she will have PET/CT scans Monday morning.  If the results of her scans continue to show no evidence of disease, she will switch over to maintenance chemotherapy.  Fortunately, maintenance chemotherapy is less aggressive and Brooklyn is looking forward to getting back to being just a kid again!

Rhabdomyosarcoma is a type of sarcoma, cancer of soft tissue such as muscle, connective tissue, or bone.

Photos, videos, and quotes were provided by Diana, Brooklyn’s mom.

Donate Today.  Enhance your impact by GIVING MONTHLY.  Be part of something ongoing and make a difference… Every. Single. Month.  This helps sustain our efforts, long-term… just a little at a time without a financial burden on you.

Voices of Childhood Cancer:

9.1: Voices of Childhood Cancer: A September Series to Help Inspire Change

9.2: Voices of Childhood Cancer:  Putting Your Kid in Someone Else’s Hands (Maggie)

9.7:  Voices of Childhood Cancer:  Learning to Live in the Moment (Jennifer)

9.10:  Voices of Childhood Cancer: The Power of Positive Thinking (Judd)[/av_textblock]

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