Isabella Santos Foundation’s Luminary event raises $91,327 to help fund a neuroblastoma clinical trial while honoring cancer fighters.
The ISF Dream Team consists of all types of runners . . . some who have never run before, some who run a race here or there, some who want to strive to obtain a dream they have never achieved, and some who are passionate runners every day. The uniqueness of Isabella’s Dream Team is what makes it a “DREAM TEAM.” We celebrate everyone’s achievements . . . including a pretty special person, Danielle “Danni” Volman.
Danni was 4 years old when her mom found out she had breast cancer and leukemia. Two years later, her mom passed away. No one can fathom losing their mom, but especially at such a young age. Danni grew up convinced she wanted to do anything and everything to help find a cure for cancer.
Through her elementary, middle and high school years, Danni used her love for math and sports to fundraise to help find a cure. During this time, a teacher at her high school had a daughter who was diagnosed with neuroblastoma. Danni coordinated a 5k for the school, embracing the power of many to give support and love to this precious little girl. Not only is the little girl still alive today, but she continues to impact Danni’s life to never stop fundraising for cancer.
When Danni learned about the Isabella Santos Foundation, she knew she was going to be involved – – somehow, someway. She already had neuroblastoma affect her life, and she knew she could help make an impact.
Danni joined the ISF Dream Team in 2014, still using her love for math and sports to help fundraise for crushing cancer. She accomplished many races over the last several years. In 2017, Danni qualified and finished the Boston Marathon for the very first time. Even though the weather for the 2017 Boston Marathon was the worst weather in its history (30mph winds, 37 degrees, and pouring rain!), Danni completed a dream of hers. The ISF Dream Team is so proud of you Danni!
Danni has collectively raised over $85,000 for cancer research, and she is on track for hitting a personal goal this year for the Isabella Santos Foundation – $20,000. She only needs $2500 to hit this goal. Let’s cheer her on and make a donation in honor of her mom.
Click on Danni’s First Giving page to make a donation: https://www.firstgiving.com/fundraiser/danni/2018-Isabella-s-Dream-Team
ISF Dream Team
The ISF Dream Team, created in 2014, is a running group that assists you in training to run the race of your dreams. You can train for a 5k, 10k, half marathon, half marathon relay, full marathon relay, or a full marathon. You are provided a training schedule, invited to group runs, and inspired by a phenomenal team of people. Not only will you meet a dynamic group of people, but you will also be inspired through your friends and family as they support you through the training. The ISF Dream Team has raised over $400,000 to date, with the funds contributing to our local Charlotte community. If you want to join the ISF Dream Team, we would love to hear from you. Please email us at email@example.com.
$1,000,000 was our 2017 fundraising goal. $1,025,467 was raised! We are beside ourselves with excitement and extremely grateful for your support. Thank you to our volunteers and employees that work tirelessly towards our foundation mission.
We set a very specific objective behind our 2017 goal… bringing a MIBG room to Levine Children’s Hospital. This new-state-of-the-art MIBG room will help families with kids facing cancer. Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients. We are excited to see ground break in March in honor of Isabella’s birthday and look forward to sharing more specific developments as this new pediatric cancer treatment room and program developments.
ISF helped fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG) last year. This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in late 2018 where an MIBG room is available. It is very exciting that Levine Children’s Hospital will be able to offer this advanced therapy.
WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.
WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.
Written by Erin Santos, Isabella’s Mommy
It’s been a long 5 years but relationships are growing and changing at Levine Children’s Hospital. I’ve gone from admiration and love, to fear and anxiety and then back again with these doctors. The walls and people that once crippled me upon entering after Isabella’s death have become a second home to me. I know I can joke a lot about how a large donation commitment can buy you a hospital friendship, but it’s become much more than that. I feel like I have become so much stronger around them. Just a few years ago, I could barely stand without my knees buckling when I knew Dr. Kaplan was going to be at an ISF event. Then, this past July – I find myself in the oncology clinic helping give gifts to the kids for our Christmas in July event. I feel him coming down the hall before I even see him, just like it used to be – and my heart still stops for a minute. We exchange pleasantries and hugs – like you do with an old boyfriend who you run into at a Starbucks years later. It’s uncomfortable because there was history… but it’s becoming more comfortable because there IS history. Not sure if I can ever feel totally comfortable around him – but I’m trying really hard.
Luckily, my new contact at Levine isn’t my old boyfriend Dr. Kaplan 🙂 As I sat in the “Green Room” of the NBC Charlotte news studio this week for over an hour with Dr. Javier Osterheld (one of Isabella’s past oncologists), I found myself comfortable and enjoying the company. We were together to talk on air about the MIBG treatment room ISF is funding at Levine’s. We talked about all things cancer, the hospital, family, beer and other things that might be tad inappropriate. I found myself laughing and enjoying the company of a man who I wasn’t the biggest fan of several years ago. Cancer can make you love and hate people all in the same week. He is easier for me because we don’t have the 5 year history that I had with Kaplan. He wasn’t there in the beginning or the end.
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