June marks a significant date as it is the month that Isabella lost her fight to neuroblastoma. This year will be 5 years since we lost her to this horrible disease on June 28th, 2012. The Santos family has been through their ups and downs in dealing with losing a daughter, sister, granddaughter, great-granddaughter, niece and cousin. But as you have most likely noticed, they have persevered… and they lead the push to fight for kids with cancer in Isabella’s honor. This month we will be sharing both the happy and raw times as we celebrate Isabella’s spirt and the legacy she left behind.
How unfair her life has been, but how beautiful it has been as well…
“But as I laid her in my bed tonight, I knew that hospice was right. She is trying for the last time to live.. but her body will soon lose the fight. I feel like I’m coming to peace a bit with the fact that we are going to lose her soon. The community of people supporting us doubles daily and her reach is growing nationwide. It seems fitting for her as Isabella always thought that she was a celebrity her whole life, but just wasn’t sure why. That point was made very clear today when my phone rang with a blocked number.. Taylor Swift was on the other side of my phone and she had heard of Isabella and her fight. Isabella is a huge fan of hers and a month ago, she would of screamed bloody murder to hear her on the other side of the phone. But, this disease is taking all the of things about Isabella that made her so wonderful. It was all she could handle to just lay on the couch and listen to this woman she loves speak to her through the phone. She could barely speak, she just looked at the phone with one eye closed as if she was trying to see Taylor in the phone somehow. If you could of seen Isabella at her concert a couple of months ago, it would take your breathe away to see her now. How just a couple of months and a horrible disease can steal more and more things from her every day. Makes me so sad to see it. Even the revolving door of loved ones who leave and I know they are thinking it is the last time they will ever see her. This is my day.. my heartbreak, Isabella’s heartbreak, and heartbreak from everyone we come in contact with. I can only think that through her life, so many are changed that it will make the difference.. maybe even save another child’s life. Isn’t that what we all want? Our life sacrifice. knowing it can save someone else’s? That is an amazing gift. One death for the sake of millions? I know that is what Isabella would want in the end. To know that because of her, another little girl will not have to miss her last day of kindergarten. I selfishly wish that my daughter was the one being sparred. That her last day of kindergarten tomorrow would be filled with laughing and running and playing. Instead we head to the clinic for a full day of blood and platelets. Another memory, stolen. How unfair her life has been, but how beautiful it has been as well.” -Isabella’s Mommy (June 7, 2012)
We can accomplish so much more if we fight cancer together. Learn more about donating to the Isabella Santos Foundation.