Kylie, 5 Years Old, Neuroblastoma

With your help, we are changing the world for kids fighting cancer. For Pediatric Cancer Awareness Month and our 15th Anniversary, follow along this month as we share stories of our past, present, and future. We hope you will feel inspired to change the world too. Your donation benefits the ISF Rare & Solid Tumor Program at Levine Children’s, a global program for kids battling rare cancers. Donate today.

“In July, Kylie’s trip to Disney World was cut short due to excruciating back and abdominal pain followed by vomiting. A trip to the Advent Health Emergency room in Florida unearthed their worst nightmares. A mass on her right kidney was discovered. Kylie, with her mother by her side, stayed in Florida until June 20th when she was stable enough to fly back home to North Carolina. Upon arrival, she was transported straight to Levine Children’s for further testing. On June 22nd, Kylie underwent surgery to perform a biopsy on her tumor, and receive a port for chemotherapy.  On June 23rd, Kylie was diagnosed with neuroblastoma which was also found to be metastasized to her bone and bone marrow.

Kylie is progressing through treatment well. Her last scan and biopsy showed significant improvement. But her little body is getting tired. She is requiring more blood/platelet infusions and her white blood cell count is not recovering as quickly. She will have another scan and bone marrow biopsy this week then she will have surgery to remove her primary mass at the beginning of October.” -Kylie’s Family

We hope you feel inspired to help us change the world for kids like Kylie by donating during Childhood Cancer Awareness Month. Your donation benefits the ISF Rare & Solid Tumor Program at Levine Children’s, a global program for kids battling rare cancers. The very program that Kylie is being treated under. 

Learn more about all the cancer warriors we have featured and their stories.