Tag Archive for: rare pediatric cancer treatment

Isabella Santos Foundation Donates $650,000 to Levine Children’s

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On December 23, 2019 our foundation was proud to end the year by presenting Atrium Health’s Levine Childrens Hospital with a donation in the amount of $650,000. This donation will benefit the ISF Rare & Solid Tumor Program at the hospital. The program will oversee care for all solid tumors, rare tumors, MIBG therapy and all related clinical and scientific research at the hospital.

Left to Right: Dr. Oesterheld (LCH), Erin Santos (ISF), Karen Murphy (ISF), Dawn Bartock (LCH), Rachel Wood (ISF), Kayla, Merritt & Aaron Plummer (Rhabdomyosarcoma cancer family)

We lost two very special souls recently. In November Corey Morgan lost his battle to Ewing’s Sarcoma at 20 years old. Just two days ago Madison Fedak lost her battle to Osteosarcoma at 7 years old. It’s just not right. So today we made this donation in their honor. They inspire us to keep going. To do more. There has to be more options for kids fighting rare pediatric cancers and we are determined to increase survival rates. We just wish we could have done more in time for Corey and Madison.

Thank you to everyone for supporting us this year. Thank you from the bottom of our hearts. We can’t make a difference and change outcomes for kids fighting cancer without you. This donation was made possible due to your support. 

We are so sad… but we are equally as mad. Our fire is lit. Watch out 2020 we are coming for you and ready to do more.

MIBG Treatment Room Construction Begins at Levine Children’s Hospital

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How satisfying is it to see your $1 MILLION worth in donations at work? To be able to touch and see the impact your dollars have on kids with cancer is immeasurable. Dawn (MIBG Therapy Program Director) and Lindsay (MIBG Head RN) stopped by the Levine Children’s Hospital ISF MIBG construction site to view the first steps of construction. Demo of the current hospital rooms where the MIBG treatment area will reside are underway, with the heavy demo starting today. We look forward to sharing progress photos and watching your impact unfold.

Levine Children’s Hospital will be 1 of 20 hospitals to have a MIBG Treatment room in the U.S. The two-room MIBG suite will provide targeted radiation to pediatric neuroblastoma patients and other rare pediatric cancers with minimal side effects. This will impact kids fighting cancer beyond the greater Charlotte region. Continue reading about the ISF MIBG room.

We are looking for individuals who want to be part of providing comfortable care for the kids/families that go through MIBG Treatment. Our new MIBG Ambassador Program gives you the flexibility of raising $5,000 the way you want to raise it… 100% of funds raised through this program will be distributed very specifically through our LCH partnership with this very targeted MIBG purpose. {You do not have to be located in Charlotte to participate, contact Tia for details}