ISF MIBG Ambassador: Tim McBride

We are excited to announce our very first committed ISF MIBG Ambassador, Tim McBride. The ISF MIBG Ambassador is a new program we have rolled out where each ambassador commits to raising $5,000 through his/her own network. We couldn’t think of the most perfect person to help us kick this program off. Tim fundraises 365 days a year for a variety of foundations and types of cancers, all while leveraging what he knows and loves best: running, bringing joy to kids at Christmas as Santa McBeast, and making whatever impact he can in ALL that he does.

Tim just retired. So we have to make sure he stays busy! And we love that he doesn’t take no for an answer as he fights to crush cancer every single day.

Funds raised through this program will be distributed very specifically through our partnership with Levine Children’s Hospital with a very targeted purpose. So get creative and fundraise the way you want to.

We hope you will join us at our MIBG Ambassador KICK OFF meeting on May 22 at 6:30 at the Santos Home.  Drinks and light appetizers will be available.  Please R.S.V.P. by Sunday, May 20th.  If you cannot attend and would like information, please contact tia@isabellasantosfoundation.org for details.
You do not have to be in Charlotte to participate!  Email Tia for more information.
 x
Date: Tuesday, May 22
Time:  6:30 pm
Location:  Santos Home

A New Way to Make an Impact: Isabella Santos Ambassador Program

Take your support of the Isabella Santos Foundation to the next level
 X
As the Isabella Santos Foundation MIBG treatment suite at Levine Children’s Hospital goes under construction, we want to ensure that we help plan for the kids and their families who will have to walk through its door for cancer treatment.  We have developed the Isabella Santos MIBG Ambassador Program, a new way of fundraising and making an impact.  As an Isabella Santos MIBG Ambassador, you agree to help raise $5,000 to provide a comfortable and customized experience for all families and children who undergo MIBG therapy at Levine Children’s Hospital.  This program gives you the opportunity to leverage your network and raise funds the way you want to raise them.  100% of your donation will go to help support patients and families by helping provide items and experiences that we will detail during our upcoming MIBG Ambassador kick off meeting.
 X
We hope you will join us at our MIBG Ambassador KICK OFF meeting on May 22 at 6:30 at the Santos Home.  Drinks and light appetizers will be available.  Please R.S.V.P. by Sunday, May 20th.  If you cannot attend and would like information, please contact tia@isabellasantosfoundation.org for details.
 x
Date: Tuesday, May 22
Time:  6:30 pm
Location:  Santos Home

ISABELLA SANTOS FOUNDATION RAISES $30,000, GIFT SUPPORTS NEUROBLASTOMA RESEARCH AT NATIONWIDE CHILDREN’S HOSPITAL

Columbus, OH – 12/6/2017

The Isabella Santos Foundation has raised and donated $30,000 to Nationwide Children’s Hospital to honor the memory of their daughter, Isabella, and to advance pediatric cancer research.
“We are very grateful to the Isabella Santos Foundation for their generosity and dedication to supporting the research that is so important to so many of our families,” said Steve Testa, senior vice president and executive director of the Nationwide Children’s Hospital Foundation. “This gift helps us continue to discover new ways to deliver the best possible care to our patients, who come to Nationwide Children’s from across the country and around the globe.”
This generous gift was raised during a silent auction at the Isabella Santos Foundation’s inaugural Ohio chapter event, “Cocktails for a Cure,” in August. Attendees gathered to learn about pediatric cancer research, treatments and programs that impact local children in the central Ohio community. All of the proceeds from the event benefitted neuroblastoma research at Nationwide Children’s.
“We are thrilled to have expanded our organization into Ohio and Nationwide Children’s,” said Erin Santos, president of the Isabella Santos Foundation and Isabella’s mom. “This event was part of our one million dollar goal this year, and next year we look forward to doubling our impact and moving the needle forward on pediatric cancer research, honoring Isabella the entire way.”
The second annual Columbus event will be held in May 2018.
-30-
About the Isabella Santos Foundation
The Isabella Santos Foundation is a tax-deductible 501 (c) 3 that was created in honor of Isabella Santos, who fought Neuroblastoma for over 5 years. The goal of the Foundation is to raise money and awareness for Neuroblastoma research, provide financial assistance to families with children who are suffering from cancer as well as provide financial support for organizations that support children with cancer.
About Nationwide Children’s Hospital
Named to the Top 10 Honor Roll on U.S. News & World Report’s 2017-18 list of “America’s Best Children’s Hospitals,” Nationwide Children’s Hospital is one of America’s largest not-for-profit freestanding pediatric healthcare systems providing wellness, preventive, diagnostic, treatment and rehabilitative care for infants, children and adolescents, as well as adult patients with congenital disease. Nationwide Children’s has a staff of nearly 13,000 providing state-of-the-art pediatric care during more than 1.4 million patient visits annually. As home to the Department of Pediatrics of The Ohio State University College of Medicine, Nationwide Children’s physicians train the next generation of pediatricians and pediatric specialists. The Research Institute at Nationwide Children’s Hospital is one of the Top 10 National Institutes of Health-funded freestanding pediatric research facilities. More information is available at NationwideChildrens.org.

Donations At Work: Update on Project:EveryChild

Your donations at work! We love when we can share ISF funded trials or program updates. In 2016, ISF awarded Project:EveryChild with $25,000 where every type of childhood cancer, no matter how rare, will be studied by more than 200+ pediatric cancer programs of The Children’s Oncology Group, as they lead the way towards better cures.
 
With the help of ISF funds, Project:Every Child has completed the following:
 
– Project:EveryChild opened at 205 member institutions across 5 countries
 
– Combined enrollment a total of 5,916 children on to the protocol.
 
– COG Biorepository at Nationwide Children’s Hospital has collected and bio-banked nearly 20,000 biospecimens which will be made available for future translational research efforts.
 
– Expected cumulative enrollment total to reach 7,000 by the end of 2017 and then somewhere in the range of 11,000 – 12,000 by the end of 2018.
 
– Protocol amendment approved by the National Cancer Institute: COG member institutions are now implementing all of Project:EveryChild’s initially envisioned components, including the collection of patient circulating tumor DNA (ctDNA) and parental DNA samples. The collection of ctDNA is especially impactful, as it has both immediate and downstream benefits that will significantly impact how all children with cancer are treated.
 
This research capability, coupled with parental DNA collection via blood and saliva samples, will have a profound impact on our understanding of the genomic changes that arise in tumors, as well our knowledge of risk factors that increase the chances of developing childhood cancer.
 
Thank you for continuing to fight cancer in Isabella’s honor. We couldn’t have helped fund this project without you!

State-of-the-art cancer treatment suite planned for Levine Children’s Hospital

We talk a lot about our $1 MILLION goal this year. Dr. Javier Oesterheld, Levine Children’s Hospital head pediatric oncologist, and Isabella’s mom were on NBC Charlotte this week to discuss the new state-of-the-art MIBG room at Levine’s that will help families with kids facing cancer. Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients.

WATCH SEGMENT HERE

What is a MIBG, why does it need a room and why is it so expensive? Read More…