THE reality OF RARE CANCER

Every day, children are diagnosed with rare and aggressive cancers that change their lives forever. But with your help, we can make a difference. At the TORCH Initiative, ignited by the Isabella Santos Foundation (ISF), we are committed to funding groundbreaking research and giving hope to children fighting for their lives.

How You Can Help

Your donation funds life-saving clinical trials, survivorship programs and critical research aimed at transforming outcomes for rare cancer heroes throughout our region.

Every contribution – whether through a one-time gift, monthly donations, sponsorship or simply sharing our stories – your support matters.

Meet the Rare Cancer Heroes

Through your generosity, warriors like Adin, Amelia, Arya, Dakota, Lauren and Merritt will continue to dream of a brighter future, filled with possibilities and hope. 

Their stories remind us why we fight, and why your help is crucial.

Adin, Age 20

Germ Cell Brain Tumor Warrior

Amelia, Age 7

Germ Cell Tumor Warrior

Arya, Age 10

Medulloblastoma Warrior

Dakota, 5

Rhabdomyosarcoma Warrior

Lauren, 12

Ewings Sarcoma Warrior

Merritt, Age 6

Rhabdomyosarcoma Warrior

Did you know?

  • 1 in 285 children will be diagnosed with cancer before their 20th birthday.

  • Yet, only 8% of federal funding for cancer research is allocated to pediatric cancers.

  • Rare pediatric cancers make up nearly 30% of all childhood cancer diagnoses, leaving many children with limited treatment options.

Why Support?

  • Over $14 million raised since 2007 to fund life-saving research and support programs.

  • Established partnerships with leading pediatric hospitals, driving advancements in rare cancer treatment and care.

  • Direct impact on the lives of children battling cancer.

Be a Spark for Change

Together, we can create a future where no child has to face cancer alone. Take action today.