Tag Archive for: MIBG therapy in Charlotte

State-of-the-art cancer treatment suite planned for Levine Children’s Hospital

We talk a lot about our $1 MILLION goal this year. Dr. Javier Oesterheld, Levine Children’s Hospital head pediatric oncologist, and Isabella’s mom were on NBC Charlotte this week to discuss the new state-of-the-art MIBG room at Levine’s that will help families with kids facing cancer. Charlotte will be one out of 20 hospitals in the country that will be able to offer this to patients.

WATCH SEGMENT HERE

What is a MIBG, why does it need a room and why is it so expensive? Read More…

Why $1,000,000?

WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital​ and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room? 🙂

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

 

$1,000,000 Goal for MIBG Room at Levines

WHY THE $1,000,000 GOAL THIS YEAR? We have gotten this question several times. One simple fact… to bring the leading pediatric cancer treatments to local children in our surrounding communities. We have committed to fund the creation of a MIBG room at Levine Children’s Hospital and anticipate breaking ground in 2018.

WHAT DOES THIS MEAN? In just one year, our local children will not only benefit from the new MIBG room, but also trials involving MIBG therapy. With your 2017 donations, ISF was able to fund the Frontline MIBG Therapy project trial through the Children’s Oncology Group (COG). This trial hopes to reduce the number of children who relapse and reduce the burden of late effects of therapy. It will be ready for children across the country in August 2018 where an MIBG room is available. Guess who will have an MIBG room?

WHAT IS MIBG? A cutting edge, targeted therapy used to treat relapsed or high-risk neuroblastoma with little to no pain and side effects. This treatment requires a highly specialized team to deliver the therapy and a special room to assure that patients, family, and health care providers are safe.

WHY IS BUILDING A ROOM SO EXPENSIVE? The room is specifically designed for this type of therapy and is created with lead shielding due to the radioactive nature of the treatment. These lead walls provide the highest level of protection for patients and families. The MIBG room will have an adjoining suite so the patient will always be close to their family.

 

New Innovations. Local impact.

As our fundraising season moves full steam ahead with our Coffee for a Cure events scheduled at the end of March, we want to introduce you to some amazing companies that have decided to partner with us for the 2017 year as a Sustaining Sponsor.

The Isabella Santos Foundation and Levine Children’s Hospital has had a special partnership for years since Isabella was treated at LCH for neuroblastoma.   However, 2017 brings our partnership with Levine Children’s Hospital to the next level as they sign up to be a sustaining sponsor and we collaborate to bring an innovative pediatric cancer treatment to Charlotte, MIBG Therapy.   MIBG can be used to successfully treat neuroblastoma (with minimal side effects!), but a high-dose radioactive chemical that requires a special room for the patients to stay. Isabella received MIBG therapy in Philadelphia when she was filled with cancer and it destroyed it all.

We look forward to educating our supporters all year long about MIBG therapy.  Our passions are strong and very much in line and together we will make a huge impact in Charlotte (and well beyond).

Levine Children’s Hospital

Whether your family is dealing with a child’s sudden, serious health concern or a chronic illness, you’ll find help and support at Levine Children’s Hospital in Charlotte. Levine Children’s Hospital cares for patients in a warm, child-friendly environment, to help them feel better as they get better. They do it by involving you – the family – every step of the way.

Visit the Levine Children’s Hospital website