Tag Archive for: Isabella Santos Foundation

Isabella Santos Foundation donates $6,000 to Make-A-Wish Foundation

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Together we were able to raise $6,000 to be gifted to Make-A-Wish Central and Western North Carolina to go towards a child’s wish.

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Levine Children’s Certified as a COG MIBG Treatment Center Hospital

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A little update..well, actually really big news for all our supporters who helped us make the MIBG Therapy suite a reality here in Charlotte.

In 2017 so many of you helped us raise $1,000,000 to fund the Isabella Santos Foundation MIBG Therapy Suite at Levine Children’s.  In 2018 that therapy suite was constructed and Levine Children’s treated it’s first MIBG patient by the end of the year. Since then there has been a rotation of children fighting neuroblastoma, treated in the specialized therapy room.  

Just this week Levine Children’s met another exciting milestone… they have been approved as an official treating facility for MIBG therapy through the Children’s Oncology Group (COG).  This was a long time in the making and we are so proud of the LCH staff for all they have accomplished to help make this a reality.

Simply put, this advanced treatment is now more accessible to kids fighting neuroblastoma.

So what does this mean?  

  • 90% of children diagnosed with cancer in the United States are treated by a COG hospital. There are over 200 certified COG Hospitals across the U.S. and  Levine Children’s is one of them
  • Being part of this network means that every child and care team have complete access to the latest research and world-class treatments at hospitals near them.  
  • Levine Children’s has been working through the necessary steps for COG MIBG approval for the past 18 months
  • Levine Children’s is now a certified COG MIBG treating center hospital
  • Levine Children’s is now approved to administer MIBG Therapy to kids fighting neuroblastoma who are entered on the MIBG protocol through the U.S.
  • Levine Children’s is currently the 18th hospital (1 of 3 on the east coast) approved to administer MIBG Therapy in the U.S.
  • Neuroblastoma patients in Charlotte who are put on MIBG will NOT have to travel 
  • Neuroblastoma patients from all over U.S. can now be treated at Levine Children’s for MIBG

MIBG therapy provides targeted radiation to pediatric neuroblastoma patients with minimal side effects. We are thrilled this therapy will now impact kids fighting neuroblastoma beyond the Charlotte region and equally thrilled that this helps Levine Children’s continue their impact on a larger scale.  Thank you to all of you who continue to believe in our mission. We are extremely grateful for your support.

Learn more about MIBG Therapy

Thank You to our Breakfast at Tiffany’s Sponsors

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Although our Breakfast at Tiffany’s coffee events were canceled this week, we wanted to brag on our business sponsors that not only support us, but support so many others.  We spent months planning for these two inspirational packed mornings and we couldn’t wait to share it with nearly 600 attendees. Many generous business sponsors in the community were equally excited to help us make an impact this week and we are incredibly grateful to each of them for their support.

During this time more than ever community support is critical.  We are thankful for those businesses who have been with us since the beginning, as well as so many new ones who believe in our mission.  We are in this together and know we can help kids fighting beat cancer, grow hair and live their dreams.

PRESENTING SPONSOR

A new relationship for us this year is with The JEM Project and we couldn’t be more grateful.  This team of women and their passion inspire us and we appreciate them stepping into the presenting sponsor role for our breakfast events.   

JEM Project is dedicated to improving the welfare of children and women, along with preserving wildlife and the planet. This organization empowers organizations in these areas through charitable giving. 

GOLD SPONSORS

SILVER SPONSORS:

BRONZE SPONSORS:

SUPPORTERS:

Pediatric Cancer Rages On. So Do We

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Like many of you, we have a lot of questions during this challenging time.  As we navigate through this, we keep circling back to one question that we can’t seem to shake. And one that we can’t get past. What happens to the kids who are fighting cancer and fighting for their lives, while life is on hold?

March 24th is finally here and if you would have seen us a few weeks ago, we were buzzing around and beyond excited for this day to arrive to kick off one of our largest fundraising weeks of the year. Although COVID-19 changed our plans, pediatric cancer continues to rage forward and our mission will not waiver.  Now, more than ever we will remain focused on helping bring change to rare pediatric cancer research.

Today our Breakfast at Tiffany’s coffee events, presented by the JEM Project, were set to begin. Two mornings…nearly 600 attendees and our goal was $227,500.

Tomorrow Jersey Mike’s Day of Giving was planned.  One day…42 locations and our goal was $175,000 for the day and $200,000 for the month of March. Ouch. 

That’s an anticipated amount of over $425,000 of our annual goal… by the end of the week. Ouch. 

Just as all of you, we are scared during these uncertain times.  We are scared for all of the cancer families who are fighting to keep their immunocompromised children safe. We are scared for all of the hospitals filled with doctors and nurses, working day in and out.  And although we are scared, we are in this together. We remain hopeful.

Thank those of you who have already donated this month towards our many initiatives before life came to a stop. Over the next several days, we had planned on these events bringing in a significant percentage towards our annual fundraising goal and have been stunned at the turn of events.  If you are able to and feel compelled to donate, we would appreciate your support. Now more than ever. Together we can help kids fighting… beat cancer, grow hair and live their dreams.

💜 Much Love,

ISF

DONATE NOW

OTHER WAYS TO SUPPORT:

VIRTUAL JERSEY MIKE’S LUNCH:  Yes we know, Jersey Mike’s Day of Giving was technically canceled.  But not for ISF! Let’s show our local Jersey Mike’s franchise owners that we still have their back and support by ordering take out!  Invite your co-worker, team or friend and plan on lunch together tomorrow… virtual style! Order for pickup or delivery through the Jersey Mike’s mobile app to make it simple!  We are fortunate that ISF will benefit from all donations made by customers through March 31st… donations can be made through the app or at pickup.

DONATE BLOOD:  If you are healthy and able, drop into your local OneBlood donor center to help replenish the quickly depleting blood supply in your community. Find a donor center near you.

#BeatGrowLive Together

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As a nonprofit… we are scared.  But we aren’t alone. Over this uncertain period of time, we all need to share ways we can come together, share ideas to help those around us and share simple gestures to spread kindness and smiles during a very challenging time.  We are taking our Beat. Grow. Live mantra past the cancer space and challenge everyone help our neighbors. We are in this together and will #beatgrowlive.

If you have ideas or already on some volunteer projects with your kids… we want to hear about them!

  • Spread Love:  Post a picture of your favorite nurse, doctor or child life specialist with a note of how much you appreciate them.  We are all hunkering down at home, but those who care for us are working day and night. A little extra love and smiles go a long way. We love our LCH family and want them to know how much their passion means to us.
  • Donate Blood:  if you are healthy and able, drop into your local Oneblood donor center to help replenish the quickly depleting blood supply in your community. Find a donor center near you. 
  • Ronald McDonald House of Charlotte:  Make a donation to help cover the added cost of meals and other house operations during this time of heightened need. Unfortunately, they have had to halt their volunteer meal teams who cook dinner at the house for the families, but are open to having catered meals delivered. If your business or small group wants to support in this way, contact them to coordinate. At the same time, you would be helping a local restaurant.  
  • Order takeout from Jersey Mikes through their app.  Double your take out and drop it off on the doorstep of your favorite elder, first responder or a family in need. Download Jersey Mike’s App
  • Reach out to other local Charlotte nonprofits like Claire’s Army and Go Jen Go.  These organizations provide direct assistance to cancer families. Inquire if they have any immediate family needs.  Clairesarmy.org & gojengo.org

We will all get through this trying time. Many of us are feeling alone. But the good news is even though we are alone, we are together. In times like these, we tend to see the true heroes emerge and the genuine kindness of humanity. Let’s pull together to support each other. 

Our team is choosing to do good in whatever way we can. We are choosing to help our community and to Beat Grow Live. 

💜 Much Love,

ISF