Tag Archive for: charlotte neuroblastoma non profit

Cancer Stole My Sister

Speech given by Grant Santos (Isabella’s Brother) at the 2nd annual Coffee for a Cure Events.

Grant Santos & Greg Olsen, Coffee for a Cure Day 1. Photo courtesy of Stikeleather Photography

Hi, my name is Grant Santos and I am Isabella’s little brother.  Isabella was diagnosed with Neuroblastoma just 6 days after my 1st birthday so I never really knew her without cancer.  My Mom and Dad tell me stories all the time about my life with her.  We did everything together and I brought so much comfort to her when no one else could.  I would come and visit her in the hospital and crawl right up in bed with her as we would watch movies and laugh while we ate dinner together in her bed.  I would walk around the hospital with her as Mom wheeled her IV pole up and down the hallways.  She would show me around and introduce me to everyone.   She was so proud of me.  We took so many trips together.  We loved going to Disney World and running from ride to ride as we got to meet every Disney Character you could imagine.  We had special days at with the Panthers and got to meet people like Steve Smith, Tony Stewart and more.  Our whole family moved to New York City for a couple of months with Isabella got cancer in her brain.  We stayed in an apartment that overlooked the city.  I would play trains all day long while I waited on Isabella to finish treatment, then she would come home and Mom would take us to the park and play for hours.  People would always look at Isabella in a weird way because she had a big scar on her bald head but I never even noticed it on her.  To me she was always beautiful.  For the years during Isabella’s treatment, I became her best friend.  She would always ask me to hold her hand when she would get her line put in her chest.  It was hard for me to watch, but I knew that she needed me and I would help her be strong.  Near the end of her life, she didn’t want to be around very many people.  But, I was always allowed to be around her.   She would let me crawl in bed with her and watch movies and rub her back.  She would ask about my day and I would tell her all the things I did and she would tell me about her day at home or in the hospital.  We would wrestle with Daddy and laugh and sing at night together before we crawled in bed each night.

Grant Santos & Molly Grantham, Coffee for a Cure Day 2. Photo courtesy of Stikeleather Photography

These are all stories that my Mom and Dad tell me.  But I don’t really remember them.  I’m thankful for pictures and videos that tell me this story too, and I hope one day these memories become more real to me.  I remember her red hair, and how she said my name “Graaaant” when she would call for me.  I remember she like Taylor Swift and Ariel and American Girl dolls.  I remember the day she died.  I was at a summer camp and my Grandma came to pick me up.  I remember coming into Mom and Dad’s room and she was asleep in their bed and I told her goodbye and that I loved her.  I remember going to Calvary for her funeral and that my cousins were there and Miss Chrissy read a poem.  But I don’t remember much more than that.

It’s crazy to think that we were best friends, but I can’t remember it.  But that is what pediatric cancer does.  It steals people from you.  It steals sons and daughters, it steals brothers and sisters, it steals best friends.  It also steals the possibility of creating memories.  Cancer stole my sister, my best friend and a lifetime of memories that we were supposed to make together.  We were supposed to be in high school together and be at each other’s college graduations and weddings.  We were supposed to be aunts and uncles to each others kids and our kids were going to be cousins who would go to the beach together.  We were supposed to be able to call each other and complain about Mom and Dad and have secrets between us that we would never tell them.  But none of that will happen.

Now, the only way I can be the best brother I can be is to bring her flowers to her site and talk to her in my mind.  But the other thing I can do is help to find a cure for the disease that took her from me.  My gift to her to prevent someone else losing their best friend too.  She should still be here with me today, riding the bus to school, laughing, playing and fighting – the way that brothers and sisters were meant to be.  But she’s not.

I hope that you will give today in honor of my best friend and sister Isabella.  Together we can make a difference and stop this awful disease from taking one more kid from a family.  I know she is looking down on us and is hopefully proud of the brother that I’m still trying and will always be to be to her.  I miss her so much.

Thank you.

Diamonds Are a Girl’s Best Friend

As our fundraising season moves full steam ahead with our Coffee for a Cure events scheduled at the end of March, we want to introduce you to some amazing companies that have decided to partner with us for the 2017 year as a Sustaining Sponsor.

Diamonds are a girl’s best friend.  Not only has Diamonds Direct stepped up to be a 2017 sustaining sponsor in an effort to support all our events throughout the year, they are providing us with jewelry giveaways for many of our events.  What girl wouldn’t love that?  Diamonds Direct has supported the Isabella Santos Foundation and Isabella’s mission to cure Neuroblastoma for years by donating jewelry to our annual 5K/10K and 1mile fun run for Kids Cancer.    Thank you Diamonds Direct for being part of the ISF family!

Diamonds Direct

Diamonds Direct’s brick and mortar locations can be found across the south and are accompanied by a personally curated online shopping experience that has been developed to deliver the same phenomenal customer service and quality synonymous with the Diamonds Direct name.

Visit the Diamonds Direct website

Bull Engineering

As our fundraising season moves full steam ahead with our Coffee for a Cure events scheduled at the end of March, we want to introduce you to some amazing companies that have decided to partner with us for the 2017 year as a Sustaining Sponsor.

We are excited to have Bull Engineering aboard as a 2017 sustaining sponsor.  Bull has supported the Isabella Santos Foundation for years.  We met them when their child was in Isabella’s brother’s class years ago.  Love to see  connections and relationships grow.   Thank you to Bull for supporting Isabella’s mission to find a cure for Neuroblastoma.  We appreciate their support of our local Charlotte community.

Bull Engineering

Bull Engineered Products is a full service, turnkey injection molding source located in Charlotte, North Carolina. From design and rapid prototyping to assembly and delivery, we can manage a complete parts program and work behind the scenes to ensure that the tightest of tolerances are met. Bull Engineered Products is committed to providing quality parts at a competitive price.

Visit the Bull Engineering website

New Innovations. Local impact.

As our fundraising season moves full steam ahead with our Coffee for a Cure events scheduled at the end of March, we want to introduce you to some amazing companies that have decided to partner with us for the 2017 year as a Sustaining Sponsor.

The Isabella Santos Foundation and Levine Children’s Hospital has had a special partnership for years since Isabella was treated at LCH for neuroblastoma.   However, 2017 brings our partnership with Levine Children’s Hospital to the next level as they sign up to be a sustaining sponsor and we collaborate to bring an innovative pediatric cancer treatment to Charlotte, MIBG Therapy.   MIBG can be used to successfully treat neuroblastoma (with minimal side effects!), but a high-dose radioactive chemical that requires a special room for the patients to stay. Isabella received MIBG therapy in Philadelphia when she was filled with cancer and it destroyed it all.

We look forward to educating our supporters all year long about MIBG therapy.  Our passions are strong and very much in line and together we will make a huge impact in Charlotte (and well beyond).

Levine Children’s Hospital

Whether your family is dealing with a child’s sudden, serious health concern or a chronic illness, you’ll find help and support at Levine Children’s Hospital in Charlotte. Levine Children’s Hospital cares for patients in a warm, child-friendly environment, to help them feel better as they get better. They do it by involving you – the family – every step of the way.

Visit the Levine Children’s Hospital website